Decision Maker

Susana Martinez

  • NM
  • Governor

Governor of New Mexico


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Petitioning President of the United States, Tim Scott, U.S. House of Representatives, Sheila Jackson Lee, Bernie Sanders, Greg Abbott, Barbara Lee, James Clyburn, Blue Cross Blue Shield, Nikki Haley, Jerry Bro...

Together we can help fight a disease impacting sickle cell trait carriers

My name is Cora Connor and I am writing you on behalf of the estimated 3.1 million Americans affected by Sickle Cell Trait, a common blood disorder, affecting more than three hundred million people worldwide. Individuals with this disorder only carry one defective gene and generally live normal lives. These individuals are at risk for kidney injury, as recently recognized by the NCAA, and other illness. Many people (Sickle Cell Trait carriers, family members, and even physicians) are unaware that there is a rare form of kidney cancer associated with sickle cell trait, called renal medullary carcinoma (RMC). Renal medullary carcinoma is a very aggressive form of kidney cancer and is almost exclusively seen in young African Americans, under the age of 30. The prognosis of these young patients is dismal. Typical survival is under 12 months. Renal medullary carcinoma was first discovered in 1995, but between 1995 and 2012, only 240 cases were reported to The North American Association of Central Cancer Registries (NAACCR). There are a number of areas of concern with regard to this cancer: We need to determine the true prevalence of RMC. Because we lack national health policy that reinforces education about sickle cell trait, many patients do not know their status, or their risk. Without standard screening tests, early detection is almost impossible. There has never been research funding for RMC, so treatment options are limited. Furthermore, most physicians are not familiar with the disease and lack knowledge to deal with this cancer effectively. When patients are able to reach doctors that have RMC expertise, they are usually out of state and many insurance plans will not allow their patients to leave the state of residence, even if there are no local options. This is particularly true for Medicaid covered children and young adults. As a result, many people are denied the option to receive expert care. We have assembled a multidisciplinary focus group, initially through support from The William Guy Forbeck Research Foundation, with physicians, scientists, and lay participant advocates from across the United States, Europe and the Middle East. The goal of this focus group is to begin to raise awareness and to elevate the research for RMC. We are appealing to the National Institutes of Health (NIH) to promote renal medullary carcinoma research, awareness and disease intervention initiatives across the United States. We need to educate the public, as well as health care providers, about sickle cell trait and renal medullary carcinoma. We also need to launch a screening program and create a registry for this disease in order for health care providers to work collaboratively, nationally and internationally, to treat this disease and bridge the gap that currently exists in meeting the health care needs of the individuals suffering from this disease. Thank you for your time and consideration. Respectfully, Cora Connor

R.M.C. Renal Medullary Carcinoma Inc.
6,831 supporters
Closed
Petitioning Jerry Brown, Andrew Cuomo, Dannell P. Malloy, Charlie Baker, Charles Schumer, Elizabeth Warren, Kirsten Gillibrand, Chris Murphy, Richard Blumenthal, Edward Markey, Kamala Harris, Dianne Feinstein,...

Tell blue states to form an interstate single-payer healthcare system for their residents

We call on Governors Jerry Brown of California, Andrew Cuomo of New York, Charlie Baker of Massachusetts, Dannel Malloy of Connecticut, and governors of other Democratic states to explore the possibility of forming an interstate, single-payer healthcare system for their residents.  Ideally, this system would provide ALL residents of these states equal, quality health coverage which would be accepted in any of these states. It would be funded by the collective healthcare budgets of these states, as well as reallocated federal funding for programs such as Medicaid.  According to a Gallup poll published on May 16, 2016, 58% of Americans say that they would prefer to replace the Affordable Care Act (ACA) with a federally funded healthcare system that provides insurance for all Americans. However, Congress has been in a deadlock on this issue for decades. Switching from the current system -- a hodgepodge of employer-based and subsidized care for the most needy -- to single-payer has for many seemed too drastic a change for Congress to successfully implement nationally. A few states, including CA, MA, VT, and CO have discussed or tried to establish single-payer systems confined to their own states. But such systems have been bombarded with budget concerns and do not create a clear path to single-payer on the national level.  In light of this, we propose that by first forming an interstate single-payer system among a few powerful blue states, the country can gradually and steadily replace the current system with an efficient, potentially national, single-payer system as more and more states, including red states, will want to join in years to come if they see it is working well.  Call it AmeriCare?  Furthermore, we believe it would be in the interest of our states to be part of initiating this project. If acted upon, it would uniquely provide all the benefits of single-payer to residents and businesses, and show that our states are leading the way in reform on this important issue.  FAQ: Why CA, NY, MA, and CT? I want my state in too.  The author of this petition has lived in the four states mentioned, hence why they were selected, but governors of other states are on this petition's list of recipients. And residents of all states are welcome to sign and encourage their states to join too!  Is this constitutional? It appears so. This would likely be an interstate compact, which Congress has the power to allow. See: https://en.wikipedia.org/wiki/Interstate_compact

C.V. LaPointe
2,716 supporters
Victory
Petitioning New Mexico Governor

"STATE OF EMERGENCY" (DRUG EPIDEMIC / NORTHERN NEW MEXICO) HELP SAVE OUR CULTURE

With national statistics, data , and high numbers of deaths,illnesses attributed too drugs and as well our failing public schools, as direct links to the  "Drug Epidemic",  in Northern New Mexico,  we have been placed at the top of national graphs and state counties as one  of the worst places for drug overdose, suicide and illness in the country. Thus, we the undersigned concerned tax paying citizens are "Demanding a "State of Emergency" be declared in the county of Rio Arriba, in the state of New Mexico. For several decades we have been in a heavily oppressed, repressed and dire situation in regard too loosing large numbers of souls too include : Teens,  young and old adults as well as elderly citizens too the drug infestation, both legal ( narcotic/opiate, ect... ) and  illegal ( heroin/meth/pink/cocaine, ect..) drugs. As the Federal Government  and DEA cracks down on prescription drug dispensing, the adverse effects have increased the use of heroin and thus, increasing higher incidences of Hepatitis-c, AIDS, Crime, and Criminal Activity in all facets our livelihood. The age groups of addiction has scattered in both directions, currently it has trickled down too adolescence and gone up in some cases too great-grandparent ages. Its is no longer a "FAD" or a "TREND" in many circles it is becoming a "RITE of PASSAGE" and a way of life in others. WE are demanding that;   1) Assessment, treatment, triage, substance abuse teams be dispatched throughout the county communities. ; 2) That a temporary centrally located "medical" detox-facility and housing area be established too address our addicted citizens needs, with hopes that a permanent facility be established in the near future.       

Pedro Herrera
1,986 supporters