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Rare Disease

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Explore 1 petition in Rare Disease

Provide access to Yorvipath for Australians with permanent hypoparathyroidism

Australia

Topics related to Rare Disease

Disability Access to Healthcare Health and Well-being Patients' Rights Australia Technology Children Disability Rights

Stories and updates from petition starters

Update: 12 months post-TGA approval:One year after TGA approval, Yorvipath remains inaccessible in Australia. PBS listing is currently dependent on price negotiations…Read full update

Update: 12 months post-TGA approval:

Yorvipath / Hypopara UpdateThanks to everyone who has supported this cause so far! Your support means a lot to those of us who are living with this permanent…Read full update

Yorvipath / Hypopara Update

Update: Help Us Make a Miracle for Kids with CTNNB1 SyndromeDear Supporters, Thank you for supporting us in to make treatment for children affected by CTNNB1 syndrome. Your support is truly …Read full update

Update: Help Us Make a Miracle for Kids with CTNNB1 Syndrome

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