Rare Disease

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Explore 2 petitions in Rare Disease

Topics related to Rare Disease

DisabilityAccess to HealthcareHealth and Well-beingPatients' RightsAustraliaTechnologyChildrenDisability Rights

Stories and updates from petition starters

Provide access to Yorvipath for Australians with permanent hypoparathyroidism
Update: 12 months post-TGA approval:One year after TGA approval, Yorvipath remains inaccessible in Australia. PBS listing is currently dependent on price negotiations…
Update: 12 months post-TGA approval:
February 20, 2026
Provide access to Yorvipath for Australians with permanent hypoparathyroidism
Yorvipath / Hypopara UpdateThanks to everyone who has supported this cause so far! Your support means a lot to those of us who are living with this permanent…
Yorvipath / Hypopara Update
December 15, 2025
Urge CMRI to permit production of the treatment for CTNNB1 syndrome for use in Australia
Update: Help Us Make a Miracle for Kids with CTNNB1 SyndromeDear Supporters, Thank you for supporting us in to make treatment for children affected by CTNNB1 syndrome. Your support is truly …
Update: Help Us Make a Miracle for Kids with CTNNB1 Syndrome
January 18, 2024

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