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Privacy Invasion
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As a parent of children with Autism, I find this harmful instead of helpful. I dread how this will impact my kids going into adulthood soon, and how it will impede their path instead of supporting it.
Heather supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabMy children's medical data needs to remain private. It is unethical to conduct medical research on anyone without informed consent. And we all know how registries end up playing out!
Kalee supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabMy grandson is none of his business and he has no right whatsoever to try and segregate a group of individuals because of it. My grandson is an amazing person, who would put this man to shame. He works hard everyday at school, he is an amazing artist, storyteller and awesome joke teller. As his legal guardian you do not have my permission to any and all of his information, medical or personal.
Signed Paulette Slater on this date
05/09/2025.
Paulette supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabRFK, STOP preaching about a subject you know NOTHING about and are obviously SO BIGOTED about! Autism it genetic, a neurotype, NOT a disease! My son wasn’t vaxxed until late, but was BORN autistic! Signs like exaggerated born startle response, rocking in high chair, extreme gag reflex, sensitive to tastes, sensory issues, etc. I love him the way he IS! The tragedy is NOT autism, it’s LACK OF SUPPORT, INCLUSION, and ACCEPTANCE! As your admin cuts services to our children and families and schools! STAY OUT OF OUR MED RECORDS!!!!
Kathryn supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabAs mother with a child about to get diagnosed with autism. This is scary. Please don't use my private medical records. Case studies should be voluntary. I don't consent to this
Krystal supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabAs a Mother and Grandmother this is very concerning to me. There is no reason why the government should have any medical say or doing when it comes to my grandson or my grown children. That is my call and my choice. RFK Jr. should look into his own issues first before sprouting off things he knows nothing about. This is very alarming and concerning to me because this will be dealing with the HIPAA law and violates all mine or my adult children or my grandson’s privacy. This is something that can be treated with the right supports and yes even some medicines. Then once he takes this information he wants to start a registry on them. Why should we attack people who just want to be loved, care for, and treated with respect? They have enough issues in their hands trying to figure out how to do many things and now they are going to be labeled and marked for being something that is not in their control or power. They have enough hard times dealing with the world around them as it is, so why bother them? They are staying to themselves and sometimes try to help others along the way. They are good people and they do not destroy families. Yes there needs to a cure but until there is a cure stop hunting these people down like they are criminals. This is ridiculous and stupid. I will back up the Autistic community and help wherever I can. Until this madness it over with my grandson will not be tested for Autism even though I have had several people tell me he is. Until this clown gets out and stops this madness my grandson will sit right here with me with the diagnosis he has and I will continue to take care of him the way I have seen work many times. RFK Jr. just go away.
Diane supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabAs an autistic individual myself, I don't appreciate this breach of medical privacy. This also affects my two sisters who are also on the spectrum.
McKenna supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabEthical studies include safety and informed consent. Informed consent can be revoked at any time in a study and all parties involved must be informed of any risks. We have not even been given information on what our medical records will be used for, much less the risks, making informed consent impossible. Without some level of transparency, how can we know our safety is being prioritized.
If there is no way to say no, there is no way to say yes. Consent and safety are the back of bone of ethics.
Johanna supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabI am the mother of an autistic son, grown who lives in a group home & I am afraid of what Mr Kennedy is proposing, he needs to stay out of our health records!! It’s stigmatizing & absolutely wrong!!!
Barbara supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabI have worked with autistic children and their families for over 20 years. A lot of families do not know their rights, or are under so duress that they don't know they can say no. It is important that people advocate both for children's and their parents' rights. Violating privacy practices is wrong, and it needs to be addressed for individuals, complicit evidence is necessary to protect individuals and ttheir families.
deana supported: Protect Our Privacy - Stop RFK Jr.’s Mass Medical Record GrabYou’re not alone — a community of supporters is ready to back you.
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