Topic

Health

726 petitions

Update posted 2 days ago

Petition to Greg O'toole, Alex Best, The Hon. Sussan Ley MP, Sussan Ley MP, Professor Andrew Wilson

Make Soliris (Eculizumab) Available for Dialysis Patients with aHUS in Australia.

Those on dialysis with aHUS in Australia are in desperate need of your help and you can make a difference by signing this petition! Atypical hemolytic-uremic syndrome (aHUS) is an ultra-rare life-threatening blood disease that can damage major organs like the kidneys, heart, brain, and can even cause death.  Soliris (eculizumab) is the only approved drug that can save the lives of those with aHUS.  It is saving lives in the US, Spain, France, England, Germany, Russia, Argentina, Italy, and other countries.  On 12/1/2014 the Australian government made the decision to fund Soliris for a small number of aHUS patients who met “defined clinical criteria”.   This was great news for those who were new patients with active aHUS.  But those who had already lost their kidneys due to their aHUS,  and were on dialysis in need of a kidney transplant, have been denied funding.  Without access to Soliris, a transplanted kidney would suffer the same aHUS attack as their native kidneys.  A meeting was held in March 2016 by the PBAC to discuss funding Soliris for those patients needing a kidney transplant but the PBAC decided against it leaving these patients a life tied to the dialysis machine. Please sign this petition telling Sussan Ley MP, Minister of Health in Australia, and Professor Andrew Wilson, Chair of the PBAC, that they should immediately provide Soliris to those patients in Australia with aHUS who are on dialysis and in need of a kidney transplant.  These dialysis patients just want their lives back and you can help them.

Jeff Schmidt
45,441 supporters
Update posted 2 days ago

Petition to Robert Califf MD, Peter Lurie, Lamar Alexander, Patty Murray, Larry C. Gilstrap III, M.D., Bob Casey Jr., Jeff Shuren MD, Sybill Storz, Managing Director, Hal Lawrence, William Maisel MD, Donald J. Trump

Health Alert: Many Women Have Died Unnecessarily Because Dangerous Cancers of the Uterus and Ovaries Are Being Spread using MORCELLATORS. Stop MORCELLATION in Minimally Invasive Gynecological Surgery.

Friends of the Public, Many women have been harmed and have died prematurely or unnecessarily because of a routine but avoidable gynecological practice known as MORCELLATION. This world-wide practice has devastated many families for well over two decades now. More than 600,000 hysterectomies are done in the US every year. By the age of 70, one out of every three American women will have had a hysterectomy. About 90% of these surgeries are done for what is presumed to be a benign condition called fibroids. More and more of these surgeries are done with minimally invasive techniques.  Usually, to get the uterus out of the body using the "minimally invasive" technique, it is cut into small pieces with a machine called a morcellator.  However, a devastating problem happens if in fact the woman did NOT have fibroids – but if she actually had cancer.  Unfortunately, the tests that are done before a hysterectomy do not identify these cancers well.  Many gynecologists don't even bother getting any tests. In fact, morcellating cancer spreads the cancer inside the woman’s body.   This is called ‘up staging’ the cancer.  It is important to understand: 1) The average life span following accidental morcellation of sarcoma is only 24-36 months. 2) Only 15% of woman who have leiomyosarcoma (LMS) that has spread (stage 4) will be alive after 5 years. 3) Women with sarcoma who are morcellated are about 4 times more likely to die from sarcoma than if they had not been morcellated.  This is an avoidable disaster. This problem has been recognized for more than two decades.  A review of the literature, by the Food and Drug Administration, revealed that 1 in 350 women who go for fibroid surgery actually have sarcoma.  This means that everyday 2-5 women in the US – and more around the world are susceptible to having a deadly cancer spread because of morcellation. This catastrophic problem has happened in my family and we are fighting to stop this dangerous activity called morcellation.  A chance of 1 in 350 for such a devastating outcome is much too high to accept.  Women should be told the truth and the practice should stop. Please help us bring an end to spreading cancer with morcellation.  This is a totally AVOIDABLE practice.  People need to understand their options, which include hysterectomy through a mini-lapartomy incision or trans-vaginally – but – up until recently, most women never heard anything about morcellation or about the possibility of cancer upstaging. And, if they do, this risk is down-played by most minimally invasive gynecologists. We can tell you based on our experience, when cancers are spread by morcellation, the outcomes can be devastating - because the cancer is upstaged. We need your help. Please sign our petition so we can get the word out.  We want the American College of Obstetricians and Gynecologists and the American Board of Obstetrics and Gynecology to change this "standard of care" by ending the needless waste of life caused by spreading cancer with morcellation. For more information and original references see: http://journals.lww.com/oncology-times/blog/onlinefirst/pages/post.aspx?PostID=188 ) (also see:http://www.ncbi.nlm.nih.gov/pubmed/23189178) (also see:http://www.ncbi.nlm.nih.gov/pubmed/21565389). The attached video below shows an example of morcellation https://www.youtube.com/watch?v=nPkKw0j-aXE The following companies manufacture and distribute uterine morcellator devices: 1) ETHICON: Gynecare morcellator 2) Storz: Rotocut Morcellator 3) Richard Wolf Medical Instrumentation Company 4) LiNA: LiNA Xcise Cordless Laparoscopic Morcellator 5) Blue Endo MOREsolution Tissue Morcellator 6) Pneumoliner Power Morcellation System by Olympus Corporation. Intuitive Surgical's Da Vinci Robot deserves special mention, as the frequency of robotic hysterectomies performed by minimally invasive gynecologists is currently on the rise across the United States. Note that Intuitive Surgical builds and markets the DaVinci robot, which is not itself a "morcellator". However, use of the DaVinci robot almost invariably appears to require that the uterus be minced up, or morcellated, into smaller pieces inside the woman's belly cavity in order to extract from the abdomen. A clear example is shown in the following YouTube video of DaVinci being used to perform a robotic hysterectomy and manually morcellating the uterus using the endo-wrist component of the robot (morcellation is being performed at minute 5:30 of the video).  https://www.youtube.com/watch?v=f6luiX6UQmg  Without morcellation using equipment manufactured by Intuitive Surgical, robotic hysterectomies would, likely, not be possible using the DaVinci Robot. It is noteworthy that the DaVinci robot does not appear to have a readily available warning label advising against its use to morcellate tumors with malignant potential inside the body. The company's Chief Medical Advisor, Dr. Myriam Curet, a surgeon herself, has been informed and advised of this severe hazard in the use of DaVinci for robotic hysterectomy and the absence of a readily available warning label.

Hooman Noorchashm
92,259 supporters
Update posted 5 days ago

Petition to Donald J. Trump

End Predatory Healthcare Pricing

I recently served as president of a Miami hospital and got an insider’s view of the healthcare system. The lack of “legitimate” healthcare pricing has destroyed the system. Ask the price of any healthcare service and you will always receive the same answer: “What insurance do you have?”  Billing is determined by how much can be extracted from each patient on a case by case basis. Because billing rates are not set, the industry is able to prey on patients at their most vulnerable. And if you are out of network or uninsured, you pay the highest rates. A simple blood test for cholesterol can range from $10 to $400 or more at the same lab. Hospitalization for chest pain can result in a bill from the same hospital for the same services ranging anywhere from $3,000 to $25,000 or more. Price transparency initiatives are futile when prices may vary by a factor of 100 for the exact same service performed by the same provider. To stop the bleeding, Congress need only require that healthcare providers publish “legitimate pricing” which means, they can continue to set their own rates, but - a different rate for each patient - must be prohibited. Rates must be published in a uniform format such as industry standard CPT codes or a percentage of Medicare rates. Every citizen would be empowered to search any medical procedure online and see pricing for all providers within X miles. It would be as easy and familiar as checking the price of any other goods or services. Legitimate prices mean networks will be obsolete, along with the administrative burdens, tremendous costs, and limitations on patient choice which they impose. Reducing healthcare costs is the only way to materially lower health insurance premiums. Legitimate pricing will force providers to compete. Costs and therefore insurance premiums will plummet overnight. But if we keep the status quo, we will continue to see rising prices and outrage over medical bills. We shouldn’t have a system that makes us so powerless. To reverse our nation’s financial bleeding and end restrictions on patient choice, we petition for the President-Elect's support for Congress to empower citizens by mandating legitimate healthcare pricing.

STEVEN I. WEISSMAN, A Former Hospital President
111,820 supporters