Petition to Dubai Health Authority, Abu Dhabi Health Authority, United Arab Emirates Ministry of Health and Prevention
Create a Suicide Hotline in the UAE
Suicidal thoughts are a lot more common than you might think they are. Everyone thinks about suicide, just at different rates and levels. Suicidal people exist, and they’re silently struggling every day with thoughts they cannot escape without help. These thoughts slowly consume the person’s energy and motivation, leaving them without a purpose to go on or carry out their daily routine activities. Hundreds of people die by suicide each year in the UAE, and it shouldn’t be that way. Suicide is 100% preventable, and people should have the support that they need. I started this petition because I care about each and every person struggling with suicidal thoughts. I already know a lot of suicidal people, and everyone knows at least one person who is suicidal. A lot of people end up living with their suicide attempts while fewer succeed. Although a lot of attempters survive, they shouldn't have to reach a point in which they feel like death is the only escape. Instead, their attempts should be prevented. This petition is meant to be the first step towards establishing a suicide hotline in the UAE, which will save thousands of people from suicide. Your support matters. Each and every signature counts. Each and every signature makes a difference.
Petition to U.S. House of Representatives, U.S. Senate, Kathleen Rice
Only 4% of Federal Funding for Cancer Research Goes to Childhood Cancers
My 6 year old son was diagnosed with Stage 4 Alveolar Rhabdomyosarcoma (ARMS) on July 31, 2017. This is a rare and aggressive form of cancer. In quickly trying to learn all I could about childhood cancer and his disease, I learned some horrifying statistics. He has an 8% chance of surviving 5 years and this is largely because of the limited 4% of cancer research funding that is allotted to all childhood cancers – while 96% of that cancer research funding is allotted to adult cancers. In the United States, 46 children are diagnosed with cancer each day. Each day seven children lose their battle with cancer and die from it. One out of 5 children diagnosed with cancer, will die from their disease. It is the number one disease related cause of death in children. Adult and childhood cancers are biologically different. Therefore, children need different drugs and different treatment to treat their cancers. In six years, 77 new adult cancer drugs have been discovered. However, in the last 77 years, there have been only 3 new drugs for childhood cancer—two for Leukemia and one for neuroblastoma. Meanwhile, there are 12 types of childhood cancer with hundreds of subtypes. Since my child has a “rare” cancer he gets a smaller piece of that already minuscule piece of the “funding pie”. There have been no changes to treatment and outcomes for his particular cancer in several decades. Americans spend more in three days on Starbucks coffee than the federal government spends on childhood cancer research in a year. This system is broken and killing our children. Something needs to change. Childhood cancer isn’t rare. What is rare is awareness, funding, and research. Our children, my child, needs your help. They need someone to be their voice since they are too little to fight for themselves. From the bottom of my broken heart, I am begging you to help make a change. Please sign and share this petition asking Congress to give our children more cancer research funding – now.
Petition to President Rodrigo Roa Duterte
Urge the government to make hemodialysis treatment free to all Filipinos
A RESOLUTION TO RALLY THE PUBLIC IN URGING THE GOVERNMENT TO PROVIDE FREE DIALYSIS TREATMENT FOR ALL FILIPINO CITIZENS WHO HAVE TO UNDERGO THIS EMERGENCY LIFE-SAVING MEDICAL PROCEDURE FOR A LIFE-TIME WHEREAS, kidney failure has emerged as one of the major health problems throughout the country, with thousands of patients now having to undergo regular twice- to four-times a week hemodialysis treatment of four hours each in order to survive; WHEREAS, this life-time need for regular dialysis has given constant pressure to thousands of kidney or dialysis patients and their respective families who have to continuously cope with the prohibitive costs of maintaining their dialysis treatment sessions, aside from regular and emergency medical examinations, hospitalization and medicines; WHEREAS, dialysis patients in Baguio last year successfully petitioned Philhealth, the country’s medical support service, to double its fund support to dialysis patients from 45 dialysis sessions to 90 per year; WHEREAS, the 90-sessiosn-per-year Philhealth support is far from enough, as a patient undergoing three-times-a-week hemodialysis has to have 156 session a year, or 66 sessions more than the 90-session-per-year support from Philhealth; WHEREAS, this discrepancy is aggravated by the fact that the 90-session Phillhealth support is also being whittled down by medical confinement that kidney or dialysis patients are likely to undergo, which is equivalent to the cost of one session per day of hospitalization; WHREAS, this arrangement is discouraging dialysis patients from undergoing confinement even if they need to be hospitalized for fear that the Philhealth support for their dialysis would be used up by their stay in the hospital; WHEREAS, the medical condition of patients who skip dialysis treatment due to fund lack deteriorates, leading to their hospitalization and eventual emergency dialysis on a promise-to-pay agreement; WHEREAS, with the year ending, dialysis patients who have used up the 90-session-per-year Philhealth support are turning to the Department of Social Welfare, local government officials, senators and congressmen for support through the political leaders’ official funds to tide them over until the new year, when a fresh Philhealth annual support can again be had; WHEREAS, patients who are not able to access any of the aforementioned sources of support are always at a loss, with some having no choice but to forego one, two or three dialysis sessions, in the process suffering from congestion, with some deciding to forego dialysis for good, waiting for death to end the financial suffering of their families; WHEREAS, it is imperative for the government, through the Department of Health, the Philhealth, the Department of Social Welfare and Development, the Congress of the Philippines , to make dialysis treatment a free medical service addressing a medical emergency arising from kidney failure; WHEREAS, this sound medical care policy has been adopted in the United States considering the fact that kidney failure is always a medical emergency needing life-saving dialysis; NOW THEREFORE, on motion duly seconded, be it RESOLVED, to send this resolution to all Sanggunians, from the barangay, municipal, city to the provincial levels in the Cordillera and beyond, urging them to pass similar resolutions addressed to national government officials and offices which have a say towards a national policy providing free dialysis treatment to all Filipinos suffering from kidney failure, and to initiate a signature campaigns in their respective constituencies; RESOLVED FINALLY, that this Resolution be also forwarded to His Excellency, President Rodrigo Duterte, the members of the Senate and House of Representatives of the Philippines, the Secretary of the Department of Health, the Secretary of the Department of Social Welfare and Development and the Philhealth for their information and appropriate action towards a free-dialysis health policy.
Petition to U.S. Senate, U.S. House of Representatives, Paul Ryan, Bernie Sanders, Donald Trump
Remove health-care subsidies for Members of Congress and their families
Several years ago, my dad got the news that he had cancer. Sadly, he passed away. My dad had a job at the time, but his employer did not cover him, and without coverage, he avoided going to the doctor until it was too late. As Congress and President Trump try to pass a new healthcare law, I'm reminded of my father and whether he would have made it if he had early access to cost-effective health care. Affordable health care is in decline as premiums and health costs increase at exponential rates. Some politicians cannot relate to the cost burden experienced by families across the nation because they’ve historically received health benefits that most Americans have not. Like millions of people who are panicking about possible changes to their health insurance, I’m concerned the people elected to represent us won’t have to live with the consequences or expenses that the rest of us may have to face soon. I want lawmakers to commit to treating themselves just like those who will be impacted by ACA repeal or replacement. A lot of Members of Congress promote choice as an American value, which is all the more reason for them to have to continue to choose their own health coverage from the free marketplace. If private health care is good for the American citizen, it should also be good for the people that defend it. If Congress is willing to drastically cut healthcare subsidies for most people, are they willing to have the same rules apply to them and their families?
Petition to Robert Califf MD, Peter Lurie, Lamar Alexander, Patty Murray, Larry C. Gilstrap III, M.D., Bob Casey Jr., Jeff Shuren MD, Sybill Storz, Managing Director, Hal Lawrence, William Maisel MD, Donald J. Trump
Health Alert: Many Women Have Died Unnecessarily Because Dangerous Cancers of the Uterus and Ovaries Are Being Spread using MORCELLATORS. Stop MORCELLATION in Minimally Invasive Gynecological Surgery.
Friends of the Public, Many women have been harmed and have died prematurely or unnecessarily because of a routine but avoidable gynecological practice known as MORCELLATION. This world-wide practice has devastated many families for well over two decades now. More than 600,000 hysterectomies are done in the US every year. By the age of 70, one out of every three American women will have had a hysterectomy. About 90% of these surgeries are done for what is presumed to be a benign condition called fibroids. More and more of these surgeries are done with minimally invasive techniques. Usually, to get the uterus out of the body using the "minimally invasive" technique, it is cut into small pieces with a machine called a morcellator. However, a devastating problem happens if in fact the woman did NOT have fibroids – but if she actually had cancer. Unfortunately, the tests that are done before a hysterectomy do not identify these cancers well. Many gynecologists don't even bother getting any tests. In fact, morcellating cancer spreads the cancer inside the woman’s body. This is called ‘up staging’ the cancer. It is important to understand: 1) The average life span following accidental morcellation of sarcoma is only 24-36 months. 2) Only 15% of woman who have leiomyosarcoma (LMS) that has spread (stage 4) will be alive after 5 years. 3) Women with sarcoma who are morcellated are about 4 times more likely to die from sarcoma than if they had not been morcellated. This is an avoidable disaster. This problem has been recognized for more than two decades. A review of the literature, by the Food and Drug Administration, revealed that 1 in 350 women who go for fibroid surgery actually have sarcoma. This means that everyday 2-5 women in the US – and more around the world are susceptible to having a deadly cancer spread because of morcellation. This catastrophic problem has happened in my family and we are fighting to stop this dangerous activity called morcellation. A chance of 1 in 350 for such a devastating outcome is much too high to accept. Women should be told the truth and the practice should stop. Please help us bring an end to spreading cancer with morcellation. This is a totally AVOIDABLE practice. People need to understand their options, which include hysterectomy through a mini-lapartomy incision or trans-vaginally – but – up until recently, most women never heard anything about morcellation or about the possibility of cancer upstaging. And, if they do, this risk is down-played by most minimally invasive gynecologists. We can tell you based on our experience, when cancers are spread by morcellation, the outcomes can be devastating - because the cancer is upstaged. We need your help. Please sign our petition so we can get the word out. We want the American College of Obstetricians and Gynecologists and the American Board of Obstetrics and Gynecology to change this "standard of care" by ending the needless waste of life caused by spreading cancer with morcellation. For more information and original references see: http://journals.lww.com/oncology-times/blog/onlinefirst/pages/post.aspx?PostID=188 ) (also see:http://www.ncbi.nlm.nih.gov/pubmed/23189178) (also see:http://www.ncbi.nlm.nih.gov/pubmed/21565389). The attached video below shows an example of morcellation https://www.youtube.com/watch?v=nPkKw0j-aXE The following companies manufacture and distribute uterine morcellator devices: 1) ETHICON: Gynecare morcellator 2) Storz: Rotocut Morcellator 3) Richard Wolf Medical Instrumentation Company 4) LiNA: LiNA Xcise Cordless Laparoscopic Morcellator 5) Blue Endo MOREsolution Tissue Morcellator 6) Pneumoliner Power Morcellation System by Olympus Corporation. Intuitive Surgical's Da Vinci Robot deserves special mention, as the frequency of robotic hysterectomies performed by minimally invasive gynecologists is currently on the rise across the United States. Note that Intuitive Surgical builds and markets the DaVinci robot, which is not itself a "morcellator". However, use of the DaVinci robot almost invariably appears to require that the uterus be minced up, or morcellated, into smaller pieces inside the woman's belly cavity in order to extract from the abdomen. A clear example is shown in the following YouTube video of DaVinci being used to perform a robotic hysterectomy and manually morcellating the uterus using the endo-wrist component of the robot (morcellation is being performed at minute 5:30 of the video). https://www.youtube.com/watch?v=f6luiX6UQmg Without morcellation using equipment manufactured by Intuitive Surgical, robotic hysterectomies would, likely, not be possible using the DaVinci Robot. It is noteworthy that the DaVinci robot does not appear to have a readily available warning label advising against its use to morcellate tumors with malignant potential inside the body. The company's Chief Medical Advisor, Dr. Myriam Curet, a surgeon herself, has been informed and advised of this severe hazard in the use of DaVinci for robotic hysterectomy and the absence of a readily available warning label.
Petition to U.S. House of Representatives
Health Coaches - You Ready to Change the World?
We all know the problem, trillions are spent on "healthcare" yet we're sicker than ever before. We need a game changer, a disrupter, a new type of leader. Shifting people from unhealthy routines to sustainable, health and happiness promoting habits brings lasting wellness and lower healthcare costs. The system is not sustainable and Health Coaches will work alongside our allies to rectify our current healthcare crisis. But we can’t do it alone. HEALTH COACHES - we need you to take action! New drugs and expensive invasive and dangerous interventions are not going to lift us out of the mess we're in, the growing movement embracing a holistic approach with food and lifestyle changes as the new prescription of choice. Join us. Tell Congress to support Health Coaches! Sign the petition here to have the letter below sent directly to your members of Congress to show your support and be sure to contribute to the fundraiser.
Petition to U.S. House of Representatives, U.S. Senate, New Hampshire State House, New Hampshire State Senate, New Hampshire Governor, The US Senate, Beth Bell, MD, Sylvia Burwell, Dr. Tom Frieden, Rima Khabbaz
Calling for a Congressional investigation of the CDC, IDSA and ALDF
We are experiencing a health crisis here in New Hampshire and across the country with the growing epidemic of Lyme disease. A number of legislators have personally been affected and have introduced legislation to address this problem. Here are just a few recent examples. Massachusetts Representative David Linsky: “The occurrence of Lyme disease has reached near epidemic proportions in Massachusetts. Virtually every family in Massachusetts has been affected by Lyme disease in some way. Lyme disease is a public health crisis in the Commonwealth.” Read more… Connecticut, Rhode Island, New York Senator Richard Blumenthal: "Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease” Read more…. New Jersey, Pennsylvania Congressman Chris Smith: "It seems everywhere I go, someone comes up to me to talk about how Lyme disease has severely impacted their lives or someone they know," Read more… Virginia Virginia Governor’s Task Force Chair Michael P Farris, Esq: "Doctors here in Virginia are committing malpractice by saying the ELISA test is sufficient." Read more… Texas Sen. Harris says he was severely affected by the disease, but “got a lucky break.” His doctor, constrained by a disciplinary board that limited antibiotic use for tick-borne illness to 1 month or less, arranged for 17 physicians to take turns writing prescriptions for Sen. Harris’s treatment. Read more… Two HoustonTexas physicians tested their chronically ill patients for Lyme disease via CDC Western blot criteria finding all patients positive for the infection in a state where the prevalence of Lyme infected ticks is only about 1-2%. “No history of bull’s-eye rash or illness following tick bite was reported by these patients.” The CDC defines “Lyme disease” exclusively as a zoonotic illness. Congenital and gestational transfer cases have been disregarded for reasons not evident to us”. Read more… Congenital Transmission of Lyme: 28 Peer-Reviewed Studies After spending four years on this subject the following statement from a physician on the front lines treating the late stage Lyme epidemic for a quarter century rings true: “In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.” We have studies proving persistent infection after antibiotic treatment for mice, dogs, ponies, monkeys, cows, iris biopsy, and ligamentous tissue but if you perform a simple Yahoo search for the following statement, “There is no convincing scientific evidence that chronic Lyme exists” you will find the top search results are connected to “elements of academic medicine” involved in the denial of the late stage Lyme epidemic. Persistent Lyme infection: 273 Peer-Reviewed Studies Circular reasoning: "Suppress all evidence and then proclaim there is no evidence" “One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement.” Read more… The following CDC letter (Dec 1996) addressed to former Senator Alfonse D’Amato promising to inform the medical community that the CDC’s Lyme case definition was created for reporting purposes only and not intended for clinical diagnosis is yet another failure on the part of the CDC to follow up on their responsibilities. Countless numbers of Lyme patients have been denied treatment and insurance reimbursement as a result of the restrictive case definition. Read more… Jan 2004 testimony from Paul Mead, M.D., M.P.H. Medical Epidemiologist from the CDC’s Division of Vector-Borne Infectious Diseases: “No surveillance case definition is 100% accurate. There will always be some patients with Lyme disease whose illness does not meet the national surveillance case definition.” Read more… Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies There has been a combined effort on the part of the CDC, IDSA and ALDF to use the media for propagating the Lyme disease disinformation campaign following Chomsky's propaganda model. They have used Medscape, Family Practice News, The New England Journal of Medicine, The Lancet Infectious Diseases and now The American Heart Association to spread the disinformation. This deliberate campaign is aimed at purposely confusing our medical community to keep case numbers artificially low by omitting the late stage of the disease entirely as there is absolutely no medical training whatsoever for the later stages of this disease (Willful Ignorance) so patients are often ping ponged though the medical community for years or decades before obtaining a late stage Lyme diagnosis. Nine Steps to Deny an Epidemic on a National Level 101 Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Alan Steere’s research. Read more…. Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Gary Wormser’s research. Read more…. Dr Alan MacDonald’s letter to the editor of Clinical Infectious Diseases questioning the reality of the abstract by Lantos, Auwaerter, and Wormser: Read more….. Agenda-driven bias: “People with these types of agendas may be more likely to abuse meta-analysis due to personal bias” NEJM editor: “No longer possible to believe much of clinical research published” When “evidence based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science? Email message sent to the editors of the publications listed above announcing this petition. Read more… It’s all about the VACCINE It has become blatantly obvious that the CDC will go to great lengths to insure that Lyme disease remains within its narrow definition in order to fit the vaccine model. Chronic Lyme does not fit any vaccine model. The CDC has long known about the virulence and persistence of this spirochete focusing on a vaccine as the cure-all to this world wide epidemic. The late stage/chronic Lyme community has become collateral damage for a vaccine market in the course of a government sponsored initiative as Baxter’s phase III clinical trials are underway. The CDC has aligned itself with institutions/researchers with a bias against persistent infection and has misused its authority by inappropriately allotting government funds to Mass General Hospital (Dr Alan Steere) and New York Medical College (Dr Gary Wormser) as identified in the following communications. Read more…. The Principle Investigators of the two previous Lyme vaccines: Allen C. Steere for SmithKlineBeecham's LymeRix and Gary Wormser for Connaught's vaccine (which never made it to market) have conceptualized a disease that would enable vaccine development. The one-size-fits-all Lyme treatment guideline (lead author: Gary Wormser) matches the conceptualized disease. A preventive vaccine for Lyme disease would not satisfy the FDA if a chronic persistent infection and seronegative disease exist. Post-treatment Lyme disease syndrome is simply a fabricated medical condition disguising treatment failure. Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies It remains questionable that a Lyme disease vaccine is practical for an infection that produces a lack of immunological memory (unlike Measles, Mumps etc.) so the Wormser study fabricating a six year strain-specific immunity makes perfect sense for the marketing/acceptance of such vaccine as identified in a letter to Editor in Chief, Ferric C. Fang, M.D. Infection and Immunity. Read more… The producers of the documentary, “Under Our Skin,” submitted a Freedom of Information Act (FOIA) request to investigate possible conflicts-of-interest of three Centers for Disease Control (CDC) employees who control public health policy for Lyme disease. (Barbara Johnson, Paul Mead and David Dennis) That request was finally fulfilled (May 2012) from the Department of Health and Human Services (five years later!). The information received is highly redacted with approximately half the information cut. What does the CDC know about Lyme disease that requires hiding from the public? The Centers for Disease Control has betrayed the public trust. For more on the FOIA see Poughkeepsie Journal article # 1 article # 2 By Mary Beth Pfeiffer Mary Beth Pfeiffer of the Poughkeepsie Journal highlighted the worst conflicts of interests between federal officials and a core group of researchers receiving government grants in the “ties that bind” page. Read more… Who is responsible for the “highly pathogenic” clone of the Lyme disease bacteria, (Borrelia burgdorferi) found in Europe and North America as reported by the journal Emerging Infectious Diseases? Read more… The following list establishes who knew what and when identifying their contribution to the disinformation campaign aimed at denying persistent Borrelia infection. When subpoenas are issued CDC officials cannot claim conflicts of scheduling issues and must attend to testify under oath regarding the mishandling of Lyme disease. Congressional Investigation Subpoena List 1. CDC Officials DAVID DENNIS (1) (2) (3), C. Ben Beard, Barbara Johnson (1), Paul Mead (1), Joseph Breen Former NIH Lyme Program Officers Phillip Baker, Edward McSweegan (1)(2) 2. IDSA Lyme Treatment Guideline Authors (1) (2) (3) (4) Gary P Wormser (1), Raymond J. Dattwyler (1), Eugene D. Shapiro, John J Halperin (1), Allen C. Steere (1), Mark S Klempner (1), Peter J. Krause, Johan S. Bakken, Franc Strle, Gerold Stanek, Linda Bockenstedt (1), Durland Fish (1) (2), J. Stephen Dumler, Robert B. Nadelman Academic Medicine Paul Auwaerter, Arthur Weinstein (1) 3. The American Lyme Disease Foundation Phillip Baker, (1) (2) Executive Director Please call your legislator and respectfully urge immediate action from the U.S. Senate and U.S. House of Representatives to fully investigate the facts surrounding the failures of leadership and management deficiencies by requesting a Congressional investigation of the CDC, IDSA and ALDF (Find your Senator) (Find your Representative) Yolanda Foster on Lyme disease, one of the "Real Housewives of Beverly Hills” Dr Alan MacDonald on Alzheimer's and Lyme disease, “The Biology of Lyme Disease: An Expert's Perspective” Remarks: World Wide Lyme Rally & Protest Kenneth B. Liegner, M.D. Lyme disease testing flaws and conflicts of interests The Barry Marshall affect on chronic disease Inconvenient truths Bullying of Lyme patients List of abbreviations CDC: Centers for Disease ControlIDSA: Infectious Disease Society of AmericaALDF: American Lyme Disease Foundation Carl TuttleHudson, NH03051 Website: New Hampshire Lyme Misdiagnosis Letter to the Editor, The Lancet Infectious Diseases Published May 2012 The Tuttle family was featured on New Hampshire Chronicle’s “Living with Lyme” with the program archived on their site in six small segments for viewing on the computer Part 1, Part 2, Part 3, Part 4, Part 5, Part 6
Petition to UPMC Health Plan
ALS Medicine Insurance Coverage
My dad, Dave Flaugh, is battling ALS. In August 2017, a new medicine for ALS called Radicava was brought to the U.S. As you may guess, our family was excited to learn more about it and how it could benefit my dad. However, we have come across a roadblock. UPMC Health Plan is refusing to cover the cost of the medicine which is over $145,000/year of treatment. I’ve started this petition because I need your help to get UPMC to cover his treatment. Your signature could help save my dad’s life. UPMC's stand is that they will only cover the cost of the medicine if the ALS patient has been diagnosed within the last two years. My father was diagnosed in August of 2015. He is active and doing much better than most with diagnoses of over two years. Also, we began inquiring about Radicava before the two-year diagnosis deadline. UPMC also said that they would only cover it if the patient's respiratory function is over 80%. My dad's is at 65% right now. Pulmonary function is a major concern with ALS. Without this medicine, my dad's pulmonary function will continue to decrease. This is an example of an insurance company playing God. How can you tell my dad that he does not deserve the chance to fight this disease with everything the medical community has to offer? According to ALS News Today, "Radicava has been found to slow down the decline of physical ability in ALS patients by a third". After hearing the positive impacts that Radicava can have for ALS patients, how can they stop my father or anyone from receiving it? My family, and I'm sure others with UPMC insurance, do not have time to waste. Please sign and share my petition to UPMC Health asking them to cover Radicava for ALS patients like my dad – today.