Petition to remove outdated names for FND

Petition to remove outdated names for FND

Recent signers:
Bethany Brooks and 12 others have signed recently.

The Issue

We, the undersigned, advocate for the removal of outdated names currently associated with Functional Neurological Disorder (FND), including the terms ‘conversion disorder’, ‘psychogenic nonepileptic seizures’ (PNES), ‘psychosomatic disorder’, and ‘pseudo-seizures’.   

Reasons for Removing Outdated Names

The current outdated names for FND contribute to the misunderstanding and stigma associated with the condition. They can lead to misinterpretation, misdiagnosis, and inadequate treatment. The use of these terms perpetuates the misconception that FND is purely psychological, thus leading to dismissive attitudes from healthcare providers and the broader community. Recent research has continued to disprove the theory that FND is purely psychological, but these names continue to be used throughout the medical community. The misunderstanding and stigma makes it further difficult to access much needed resources, such as mobility aids, financial assistance, etc. Let's explore why by looking at some definitions.

Conversion disorder: proposes that unexplained physical symptoms are a result of unconscious conflicts. The term "conversion" signifies the replacement of a psychological issue with a physical symptom, highlighting the role of psychological triggers in causing these symptoms.

    • In Diagnostic and Statistical Manual of Mental Disorders (DSM-5), the term “Functional Neurological Symptom Disorder” was added in parentheses after the DSM-IV term “Conversion Disorder.” In the DSM-5 Text Revision (DSM-5-TR), the terms are reversed so that Conversion Disorder is in parentheses. Why the change?
  • psychogenic definition: originating in the mind or in mental or emotional conflict
  • psychosomatic definition: of, relating to, concerned with, or involving both mind and body; of, relating to, involving, or concerned with bodily symptoms caused by mental or emotional disturbance
  • psycho definition: of, relating to, or being a person who is mentally or emotionally unsound or unstable especially in a way that results in dangerous or violent behavior
  • pseudo definition: being apparently rather than actually as stated​

Specific Actions and Steps

  • Collaborate with medical professionals, researchers, and advocacy groups specializing in FND to develop a consensus on updated terminology.
  • Engage in dialogue with healthcare institutions and regulatory bodies to encourage the integration of updated terminology into clinical practice guidelines and diagnostic criteria.
  • Initiate educational campaigns to raise awareness about the impact of stigmatizing language and the benefits of adopting more inclusive terminology.
  • Remove the attachment of FND and conversion disorder from the DSM-5. 
  • Require use of up-to-date materials for reference and curriculum.
  • Only use the appropriate terminology, FND, in all future publications and curriculum.

By enacting these particular measures and procedures, we can eliminate the stigma and misconceptions surrounding FND, and substitute the antiquated terminology with more comprehensive and inclusive language. It is only when the perception of the condition as being a purely psychological condition is transformed that individuals affected by FND will receive the appropriate care and support they need and deserve.

avatar of the starter
Kimberly NelsonPetition StarterNot Defined By FND is on a mission to end stigma and bring awareness, advocate for research and treatments, and create conversations to bring needed changes and hope for all FND warriors.

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Recent signers:
Bethany Brooks and 12 others have signed recently.

The Issue

We, the undersigned, advocate for the removal of outdated names currently associated with Functional Neurological Disorder (FND), including the terms ‘conversion disorder’, ‘psychogenic nonepileptic seizures’ (PNES), ‘psychosomatic disorder’, and ‘pseudo-seizures’.   

Reasons for Removing Outdated Names

The current outdated names for FND contribute to the misunderstanding and stigma associated with the condition. They can lead to misinterpretation, misdiagnosis, and inadequate treatment. The use of these terms perpetuates the misconception that FND is purely psychological, thus leading to dismissive attitudes from healthcare providers and the broader community. Recent research has continued to disprove the theory that FND is purely psychological, but these names continue to be used throughout the medical community. The misunderstanding and stigma makes it further difficult to access much needed resources, such as mobility aids, financial assistance, etc. Let's explore why by looking at some definitions.

Conversion disorder: proposes that unexplained physical symptoms are a result of unconscious conflicts. The term "conversion" signifies the replacement of a psychological issue with a physical symptom, highlighting the role of psychological triggers in causing these symptoms.

    • In Diagnostic and Statistical Manual of Mental Disorders (DSM-5), the term “Functional Neurological Symptom Disorder” was added in parentheses after the DSM-IV term “Conversion Disorder.” In the DSM-5 Text Revision (DSM-5-TR), the terms are reversed so that Conversion Disorder is in parentheses. Why the change?
  • psychogenic definition: originating in the mind or in mental or emotional conflict
  • psychosomatic definition: of, relating to, concerned with, or involving both mind and body; of, relating to, involving, or concerned with bodily symptoms caused by mental or emotional disturbance
  • psycho definition: of, relating to, or being a person who is mentally or emotionally unsound or unstable especially in a way that results in dangerous or violent behavior
  • pseudo definition: being apparently rather than actually as stated​

Specific Actions and Steps

  • Collaborate with medical professionals, researchers, and advocacy groups specializing in FND to develop a consensus on updated terminology.
  • Engage in dialogue with healthcare institutions and regulatory bodies to encourage the integration of updated terminology into clinical practice guidelines and diagnostic criteria.
  • Initiate educational campaigns to raise awareness about the impact of stigmatizing language and the benefits of adopting more inclusive terminology.
  • Remove the attachment of FND and conversion disorder from the DSM-5. 
  • Require use of up-to-date materials for reference and curriculum.
  • Only use the appropriate terminology, FND, in all future publications and curriculum.

By enacting these particular measures and procedures, we can eliminate the stigma and misconceptions surrounding FND, and substitute the antiquated terminology with more comprehensive and inclusive language. It is only when the perception of the condition as being a purely psychological condition is transformed that individuals affected by FND will receive the appropriate care and support they need and deserve.

avatar of the starter
Kimberly NelsonPetition StarterNot Defined By FND is on a mission to end stigma and bring awareness, advocate for research and treatments, and create conversations to bring needed changes and hope for all FND warriors.

Petition Updates