UPDATE FROM https://www.facebook.com/YesToTrikafta/

We’re pleased to see a positive recommendation from the PBAC for Trikafta for those with a minimal function mutation & F508del as there is not yet a modulator available to them. We hope that Vertex agrees to this part of the recommendation and that patients will have access without delay.

HOWEVER

The majority, 1800 people with CF, have again been let down by our Government not prioritising access to groundbreaking medications. For most of us, though we do have a modulator, Trikafta is 3-5x more effective. We also know that the benefits have been clearly established, based on the fact that they’ve given approval to a sub-group right now.
We await comment from Vertex as to the rest of the information in the attached outcome around the submission. We’re waiting on confirmation but we believe the next discussions won’t happen until the November PBAC meeting.What is clear is that our medication funding process needs to change… we don’t have time for these protracted negotiations to save on budget or to go through approvals for every variation of CF. We literally don’t live that long.
#CFCantWait #YesToTrikafta
Greg Hunt MP Scott Morrison (ScoMo) Vertex Pharmaceuticals Mark Butler MP
To show support and to help illustrate the burden of CF, we’d like you to post photos in the comments of something related to your medications. Could be you taking them or showing your cupboard full of the different meds it takes to hold CF at bay.