Greetings from Jenna, I returned late May 21st, 2014 from a Lyme advocacy effort in Washington DC. It was wonderful to work with such dedicated and talented advocates. We had a series of useful meetings with legislators and their staff and held a Lyme Disease Science and Policy Challenges Forum in Congress’s Rayburn House Office Building. I want to give special thanks to Dan Byers and Bruce Fries who really made this happen. The group included Allie Cashel, Author of Suffering the Silence: Chronic Lyme Disease in an Age of Denial; Ronald Stram, MD, Stram Center for Integrative Medicine; Holly Ahern, Associate Professor of Microbiology, SUNY Adirondack speaking on Microbiological Challenges of Tick-Borne Infections, Tammy Crawford, from Focus on Lyme and representing Translational Genomics Research Institute; Lance A. Liotta, MD PhD, Medical Director Clinical Proteomics Lab, George Mason University; Bruce Fries, President of Patient Centered Care Advocacy Group; Dan Byers, Senior Director for policy at the U.S. Chamber of Commerce’s Institute for 21st Century Energy and myself speaking on Government Oversight and Policy Challenges. The Lyme forum presentations will be released in a video. However, I wanted to give my complicated topic more time than the 20 minute video. And so, Sunday I put together this video based on my detailed notes and research. The topic of this video is CDC & Lyme - Oversight Required. This video was done at home and my dog Moon decided to participate in the third part of the video. I hope you find it informative. Here follow the three links – one to each part of the video: Part 1 of 3 CDC & Lyme - Oversight Required 2016, by Jenna Luché-Thayer https://www.youtube.com/watch?v=fsE_hHSsOQo Part 2 of 3 CDC & Lyme - Oversight Required 2016, by Jenna Luché-Thayer https://www.youtube.com/watch?v=ZMxty3jPdZs Part 3 of 3 CDC & Lyme - Oversight Required 2016, by Jenna Luché-Thayer https://www.youtube.com/watch?v=bWJm24mtaEA Background on videos: Jenna Luché-Thayer’s expertise includes government transparency, accountability, and the integration of marginalized groups. Luché-Thayer is informed by three decades of professional policy and grassroots experience in 40 countries. She has extensive experience in congressional relations, testimony and legislation. She has worked with governments, the United Nations, nonprofits and the corporate world and has over 65 sponsored publications. Luché-Thayer received the International Woman’s Day Award for Exemplary Dedication and Contributions to Improving the Political and Legal Status of Women (US government) and built the Highest Ranking Technical Area in Accomplishment, Innovation & Comparative Advantage for United Nations Capital Development Fund. There is a correction regarding the PLEASE Study: I misstated that Arend authored the PLEASE study, the primary author is Dr. Bart-Jan Kullberg and the purpose of the study "is to establish whether prolonged antibiotic treatment of patients diagnosed with proven or presumed PLD (as endorsed by the international ILADS guidelines) leads to better patient outcome than short-term treatment..." This Study objective is inherently flawed as International Lyme and Associated Diseases Society (ILADS) does not claim to have one particular treatment protocol for all Lyme patients. All ILADS protocols are patient centered to the patient. Therefore, the treatment protocol the PLEASE study uses does not represent ILADS nor prove or disprove any ILADS protocols. ------------------------------------------- -------------------------------------- For those of you who would like even more information on this topic I have put together some very detailed analyses I am willing to share. Please contact me with your request. Please note that Phyllis Mervine, founder of LymeDisease.org provided the information regarding the anomalies related to the New England Journal of Medicine vol. 345(2) July 12, 2001 Two controlled trials of antibiotic treatment in patients with persistent symptoms & a history of Lyme disease. Thank you – Jenna