Respite provision for parents and carers of disabled children and young people, more important now than ever before. 

Living through this pandemic with a disabled child has been one of the hardest things i have ever had to do, and i am by no means alone,  the physical, mental and emotional strain is often unbearable,  carer burnout is real, we have 24/7 jobs with no Holidays,  no time to recharge it's exhausting, we love our children more than anything and spend our lives caring and fighting but we need help..Respite can also mean a sibling can have one night where they do not feel invisible to their parents. Caring for a disabled child effects the whole family, the stress, the worry ,the lack of sleep, medication,  appointments, physio, personal care, its exhausting. We feel invisible and need more support. We need more than 2 nights sleep in a month. How are we expected to keep going?

I am asking for:

Cardiff Council and the Welsh Government to seriously review the current state of the respite services, while assessing the need of the child young person and the families. The implications of limited services needs serious consideration. 

More funding, time and energy put into respite services for our children. The UK government need to assess these services nationwide.. we (as carers) need to be able to recharge to allow us to take care of our children/ young people the best we can. 

The physical and mental pressures of caring for a disabled child are indescribable. Not all of us have family or friends to help, we are doing this alone. What happens if we get ill? We need to be able to care for ourselves to be able to care for our children. 

Please sign this petition to at least make the government aware of the importance of this topic.  It will take two minutes of your life but could improve the lives of thousands.  Thank you.