Millions of people all over the world are suffering in pain everyday with one of the most misunderstood Chronic , Not Curable diseases , Interstitial cystitis , Or painful Bladder syndrome.

We do not respond well to treatments or medications. We have a special diet to stick to and even then we sit in pain . A lot of us on our couches with heating pads on our bladders or privates or ice packs..We sit in pain with no function of life.

We are denied pain relief by many of our doctors. I belong to a support group

called inspire. I hear stories daily about how these men and woman do not now how much longer they will be able to live in such pain with no help.

I hear cries out of suicide thoughts. We pray together . We support each other but our tears and cries are not heard. I ask all of you please sign this and help all of the millions of people suffering everyday get the help they need so they can function again and have some kind of a life. 

We need research, We need funding, and we need pain management. We have lost our careers, Some of us our relationships. Our lives.  I am so scared suicide has and will continue to happen without help and awareness. I just found out this week online that they posted the 10 most painful conditions interstitial cystitis was listed as the number 3 most painful conditions , Cancer was listed as number 6. 

Where is our pain management at? Do we need cancer before they will here us cry?

So I need to add an update it was posted online that our pain is great..And it is..but I found out today...the list put up may not be accurate ..even though I feel it is....So I searched 10 most painful diseases and it turns out no one knows I.C. is painful...it does not appear on any other list except that one...where I first saw it....

Now this makes me sad...because now I really know...no one knows we exist.

no one Knows our pain...on one understands what this chronic pain is doing to us ..to our mental state of mind....I.C. is  very very painful disease...

This is why we must find a way to get awareness out!! 

I needed to post this new information..but I am not taking down what I already put up...because in my heart ..I believe this to be true...but no one you talk to has ever heard of interstitial cystitis ...so of course...we do not exist on most lists I looked at today...Please sign...and please pray for us