Urgent Reform Of Diagnostic Framework to Include PANS/PANDAS For Young Australians!

Recent signers:
Melanie Spencer and 15 others have signed recently.

The issue

Thousands of Australian children are suffering needlessly due to the outdated clinical framework that governs how medical professionals provide their patient care.

This framework fails our young Australians due to its lack of recognition, diagnostic clarity, and accessible treatment options for Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and PANDAS — conditions associated with infections like strep that cause severe mental and physical symptoms.

Families face years of misdiagnosis, costly private treatment, and little to no public support. Some children are misdiagnosed, others dismissed as psychiatric, when in fact they are suffering from autoimmune-caused brain inflammation.

This is not rare — it is just greatly under-recognised and significantly lacks clinical awareness or a clear pathway for medical management here in Australia.

As a parent fighting for my son, I’ve met hundreds of families with similar stories. There is no consistent clinical pathway for diagnosis or treatment. Paediatricians are unsupported. Parents are left to educate doctors. Children go without medical help.

We are calling for:

Formal recognition of PANS and PANDAS within national and state clinical guidelines
Mandatory education for general practitioners and paediatricians
Clear public referral and treatment pathways within the health system
Medicare-funded access to diagnostics and treatments — including long-term antibiotics, immunology assessments, and supportive therapies
Dedicated funding for research into autoimmune and infection-triggered neuropsychiatric conditions in children

This petition is not just a plea — it is a foundation.

The voices that sign this will form the strength behind my ongoing mission to advocate for national and state-level reform of the clinical approach to PANS and PANDAS.

Though no formal review or inquiry is yet underway, the urgency is undeniable. This petition reflects a community calling out — families who have been left unheard, children who have been left untreated, and clinicians who remain unsupported in navigating these complex cases.

Each signature represents not just agreement, but a united voice.

A voice that I will carry into every email, every meeting, every advocacy effort that follows.

This petition, signed by those who back its value, will be the voice of my mission to advocate for the change we all know is necessary.

By joining me in signing this petition, you are not just helping my child or your child — you are helping every child, by pushing for a healthcare system that ensures comprehensive medical attention and optimised diagnostic outcomes. These children are this country’s future. They deserve better. They deserve the best.

With every signature — and every share — we raise awareness.

Together, we rally for change.

Together, we can ensure no child is left to suffer, and no parent is left to fight the outdated medical framework alone.

1,191

Recent signers:
Melanie Spencer and 15 others have signed recently.

The issue

Thousands of Australian children are suffering needlessly due to the outdated clinical framework that governs how medical professionals provide their patient care.

This framework fails our young Australians due to its lack of recognition, diagnostic clarity, and accessible treatment options for Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and PANDAS — conditions associated with infections like strep that cause severe mental and physical symptoms.

Families face years of misdiagnosis, costly private treatment, and little to no public support. Some children are misdiagnosed, others dismissed as psychiatric, when in fact they are suffering from autoimmune-caused brain inflammation.

This is not rare — it is just greatly under-recognised and significantly lacks clinical awareness or a clear pathway for medical management here in Australia.

As a parent fighting for my son, I’ve met hundreds of families with similar stories. There is no consistent clinical pathway for diagnosis or treatment. Paediatricians are unsupported. Parents are left to educate doctors. Children go without medical help.

We are calling for:

Formal recognition of PANS and PANDAS within national and state clinical guidelines
Mandatory education for general practitioners and paediatricians
Clear public referral and treatment pathways within the health system
Medicare-funded access to diagnostics and treatments — including long-term antibiotics, immunology assessments, and supportive therapies
Dedicated funding for research into autoimmune and infection-triggered neuropsychiatric conditions in children

This petition is not just a plea — it is a foundation.

The voices that sign this will form the strength behind my ongoing mission to advocate for national and state-level reform of the clinical approach to PANS and PANDAS.

Though no formal review or inquiry is yet underway, the urgency is undeniable. This petition reflects a community calling out — families who have been left unheard, children who have been left untreated, and clinicians who remain unsupported in navigating these complex cases.

Each signature represents not just agreement, but a united voice.

A voice that I will carry into every email, every meeting, every advocacy effort that follows.

This petition, signed by those who back its value, will be the voice of my mission to advocate for the change we all know is necessary.

By joining me in signing this petition, you are not just helping my child or your child — you are helping every child, by pushing for a healthcare system that ensures comprehensive medical attention and optimised diagnostic outcomes. These children are this country’s future. They deserve better. They deserve the best.

With every signature — and every share — we raise awareness.

Together, we rally for change.

Together, we can ensure no child is left to suffer, and no parent is left to fight the outdated medical framework alone.

Support now

1,191


The Decision Makers

Pacific Communities Health District Board
2 Members
Chris Carlson
Pacific Communities Health District Board - Position 5
Aimee Thompson
Pacific Communities Health District Board - Position 4
Anthony Albanese
Prime Minister of Australia
Mark Butler
Minister for Health and Aged Care

Supporter voices

Petition updates