Trikafta Australia: The Cystic Fibrosis game changer. #TimeforTrikafta

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For many of us, good health is something we take for granted. But for Australians living with Cystic Fibrosis, this isn’t an option. Australians with CF need access to life-changing treatments … The community wants immediate access and early access to this third-generation drug.

While there is currently no cure for this condition, there is a drug – Trikafta – that has been shown to significantly improve lung function and quality of life for people with CF. The problem is that it costs $420,000 for a one-year supply. Putting Trikafta on the Pharmaceutical Benefit Scheme would change the lives of Australians living with Cystic Fibrosis by making it more affordable.

For people with CF, this means another year of waking up each day and wondering what hurdle might lay ahead. Trikafta has already been life-changing for people who have been able to access it, with one woman saying that, “for the first time in my life, I feel like I can breathe when I wake up in the morning.”

The CF community is relying on the Government and in particular the Health Minister to support our pleas for access and we expect him to do everything in his power to make this life extending drugs available in Australia as soon as possible. The Minister has listened to the CF community previously and we are grateful for his understanding and support. Australia has one of the best health systems in the world. Germany, USA, England, Denmark and Ireland have access to Vertex’s Trikafta and now it is Australia’s turn.

We can’t tolerate a long drawn out PBAC and negotiations process again while people’s health is declining dramatically When we work together to make noise, change will follow.#TimeforTrikafta #GameChanger #WishList