Today’s letter to the TBDWG
Lyme Bumper Stickers (Public Service Announcement)
https://www.ebay.com/itm/123659578861
WAKE UP AMERICA!
-------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov, chris.smith@mail.house.gov
Cc: (98 Undisclosed recipients)Date: June 28, 2019 at 8:43 AM
Subject: NY Times: My Son Got Lyme Disease. He’s Totally Fine.
To the Tick-Borne Disease Working Group,
I would like to point out a number of recent quotes from TBDWG member Eugene Shapiro who doesn’t have an answer for the question; What happens to a patient with Lyme disease who goes months, years, or decades before diagnosis because of a false-negative serological test result, missing bulls-eye rash, misdiagnosis etc.? Shapiro never discusses the consequences of untreated Lyme disease in any interview. Pure and simple propaganda tied once again to the acute stage of illness.
My Son Got Lyme Disease. He’s Totally Fine.
Horror stories about lingering Lyme disease proliferate, but the illness is easily treated.
https://www.nytimes.com/2019/06/27/well/live/lyme-disease-children-treatment-diagnosis.html
Eugene Shapiro quotes (propaganda) from the NY Times article:
1. Parents of children with certain symptoms are often anxious about a Lyme disease diagnosis, said Dr. Eugene Shapiro, professor of pediatrics and of epidemiology at Yale. But “when it turns out to be Lyme disease, we go to the parents and say, ‘Great news, it’s Lyme disease, that’s the best thing it could be,’” he said. “It’s baloney that you can’t cure Lyme disease, it’s eminently curable.”
Comment:
There are more PubMed references for treatment failure than success
700 Citations- Persistent Lyme Disease
https://www.dropbox.com/s/lbnye1u0ifsjzu3/700%20Citations-%20Persistent%20Lyme%20Disease.pdf?dl=0
2. Dr. Shapiro said a small number of people may be especially sensitive to the lingering effects of the Lyme infection, even after the bacteria are long gone. But he said most people who report chronic problems were most likely wrongly diagnosed with Lyme disease when they had something else to begin with.
Comment:
What laboratory test is Shapiro using to gauge treatment failure or success?
3. Some people who have unexplained pain or fatigue may latch on to Lyme disease as a possible explanation after getting an inaccurate diagnosis from a doctor who misinterprets the test. The doctor may then treat them for Lyme disease. “And guess what? They’re not cured — because it wasn’t Lyme disease in the first place,” Dr. Shapiro said.
Comment:
Pure and simple misleading opinion…nothing more and this is why Shapiro is named as a defendant in the Texas RICO lawsuit. Shapiro should be issued a gag order to stop the proliferation of the disinformation/propaganda which is the foundation of this racketeering scheme. Shapiro managed to find a case in the NY Times article that fits his clueless notion of Lyme disease.
Carl Tuttle
Lyme Endemic Hudson, NH