It is quite obvious that the thirty year racketeering scheme has a stronghold on the Chair of the Tick Borne Disease Working Group as we see a continuation of the study bias to eliminate the late stage debilitated patient as well as the downplaying of the severity of an infection that is destroying lives, ending careers, causing death and disability while leaving victims in financial ruin. Please see the letter below highlighting the “errors and omissions” from the latest Lyme study coauthored by Dr. John Aucott. Anyone wishing to contact the Lyme Disease Working Group can send an email to: tickbornedisease@hhs.gov -------- Original Message ---------- From: Carl Tuttle To: jaucott2@jhmi.edu, olx1@cdc.gov, tickbornedisease@hhs.gov, members@tulane.edu, dmartin@tulane.edu, w.robinson@stanford.edu, kbechto1@jhmi.edu Cc: mark.dayton@state.mn.us, daniel.tillson@mail.house.gov, kvf1@comcast.net, iturko@umd.edu, allen.l.richards.civ@mail.mil, richard.wolitski@hhs.gov, scott.cooper@cms.hhs.gov, khoney@stanford.edu, ddutko@hanszenlaporte.com, kalachakra108@aol.com, chris.smith@mail.house.gov, adam.durand@mail.house.gov, marisa.kovacs@mail.house.gov, info@smith4nj.com, matt.hadro@mail.house.gov, tamir.elnabarawy@mail.house.gov, ddiallo@sisterlove.org, collin.peterson@mail.house.gov, cbb0@cdc.gov, estella.jones@fda.hhs.gov, dennis.dixon1@nih.hhs.gov, smithr@mmc.org, mary.noonan@mail.house.gov, james.berger@hhs.gov, vanila.singh@hhs.gov, lise.nigrovic@childrens.harvard.edu, sdonta@comcast.net, wendyadams1@gmail.com, ptourad1@jhmi.edu, don.wright@hhs.gov Date: July 21, 2018 at 5:36 AM Subject: Re: Robust B Cell Responses Predict Rapid Resolution of Lyme Disease (Errors and Omissions) Robust B Cell Responses Predict Rapid Resolution of Lyme Disease https://www.frontiersin.org/articles/10.3389/fimmu.2018.01634/full 18 July 2018 Lisa K. Blum, Julia Z. Adamska, Dale S. Martin, Alison W. Rebman, Serra E. Elliott, Richard R. L. Cao1, Monica E. Embers, John N. Aucott, Mark J. Soloski, William H. Robinson Excerpt: “Prompt diagnosis is particularly important for Lyme disease, as delays in treatment are associated with an increased likelihood of persistent symptoms following treatment (36).” Dear Dr. Aucott, Your paper omitted the following important facts/details: “Lyme disease is capable of producing sudden death with no warning signs; [1,2,3,] heart damage requiring transplant, [4] paralysis with seizures, [5] lymphoma [6] and persistent infection after antibiotic treatment [7, 8,9,10,11] along with congenital transmission [12] and ability to create wheelchair bound patients [13].” A word of caution here Dr. Aucott; at some point in the not too distant future, just “toeing the line” (while knowing better) might be considered collusion in a court of law. Misdiagnosed and untreated Lyme disease creates the same life-altering/life-threatening consequences as untreated strep throat but this has been hidden from the worldwide medical community and general population. Just ask Duke University Professor Neil Spector who required a heart transplant after his Lyme infection went four years untreated. Spector’s laboratory tests (serology) were repeatedly negative. Gone in a Heartbeat https://www.lymedisease.org/book-review-spector-lyme-disease/ Respectfully submitted, Carl Tuttle Lyme Endemic Hudson, NH References: 1. Cardiac Tropism of Borrelia burgdorferi: An Autopsy Study of Sudden Cardiac Death Associated with Lyme Carditis. (March 2016) http://ajp.amjpathol.org/article/S0002-9440(16)00099-7/abstract Excerpt: “Fatal Lyme carditis caused by the spirochete Borrelia burgdorferi rarely is identified. Here, we describe the pathologic, immunohistochemical, and molecular findings of five case patients.” 2. CDC Case Study #1: Three Sudden Cardiac Deaths Associated with Lyme Carditis: http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6249a1.htm?s_cid=mm6249a1_w 3. CDC Case Study #2: A case report of a 17-year old male with fatal Lyme carditis http://www.cardiovascularpathology.com/article/S1054-8807(15)00025-3/abstract?rss=yes 4. Professor Neil Spector: Duke physician uses near-death experience to encourage patient self-advocacy http://www.dukechronicle.com/articles/2015/05/28/duke-physician-uses-near-death-experience-encourage-patient-self-advocacy#.VYlYnxtViko Dr Neil Spector from Duke University required a heart transplant after his Lyme disease went undiagnosed for four years. 5. Nashua Mom in the 'Lyme Light' on Katie Couric Show http://patch.com/new-hampshire/nashua/nashua-mom-talks-chronic-lyme-on-katie-couric-show Fifth-grade teacher Kelly Downing was paralyzed from the neck down and interviewed by Katie Couric. 6. Infection by Borrelia burgdorferi and cutaneous B-cell lymphoma (Cancer) https://www.ncbi.nlm.nih.gov/pubmed/9331890 Specific DNA sequences of Borrelia burgdorferi were identified in cutaneous lesions from 9 patients (follicle center lymphoma: 3/20; immunocytoma: 3/4; marginal zone B-cell lymphoma: 2/20; diffuse large B-cell lymphoma: 1/6). 7. Application of Nanotrap technology for high sensitivity measurement of urinary outer surface protein A carboxyl-terminus domain in early stage Lyme borreliosis. http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-015-0701-z 41 of 100 patients under surveillance for persistent LB in an endemic area were positive for urinary OspA protein after antibiotic treatment. 8. Culture evidence of Lyme disease in antibiotic treated patients living in the Southeast. http://danielcameronmd.com/culture-evidence-of-lyme-disease-in-antibiotic-treated-patients-living-in-the-southeast/ Rudenko and colleagues reported culture confirmation of chronic Lyme disease in 24 patients in North Carolina, Florida, and Georgia. All had undergone previous antibiotic treatment. 9. DNA sequencing diagnosis of off-season spirochetemia with low bacterial density in Borrelia burgdorferi and Borrelia miyamotoi infections. https://www.ncbi.nlm.nih.gov/pubmed/24968274 Faulty/misleading antibody tests landed a sixteen year old male in a psychiatric ward when his lab results did not meet the CDC’s strict criteria for positive results. His Western blot had only four of the required five IgG bands. Subsequent DNA sequencing identified a spirochetemia in this patient’s blood so his psychiatric issues were a result of neurologic Lyme disease misdiagnosed by antiquated/misleading serology. This patient was previously treated with antibiotics. 10. Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report http://www.labome.org/research/Granulomatous-hepatitis-associated-with-chronic-Borrelia-burgdorferi-infection-a-case-report.html The patient had active, systemic Borrelia burgdorferi infection and consequent Lyme hepatitis, despite antibiotic therapy. 11. Scotty Shelton and Persistent Infection in Saginaw MN https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/11685820 “Scotty's brain (cerebral cortex) was positive for Borrelia burgdorferi and Borrelia myamotoi, his testicle is positive for Bb. We are now testing other tissues. Seven years of antibiotics and 3.5 years of natural treatments (along with antibiotics) and he was highly highly positive.” 12. Congenital Transmission of Lyme/TBD https://www.dropbox.com/s/z10em0szgpm8bll/Congenital%20Transmission%20of%20Lyme%202015.doc?dl=0 13. Wheelchair-Bound Girl Calls Blessing By Pope Francis ‘Most Precious Moment Of My Life’ http://newyork.cbslocal.com/2015/09/24/pope-francis-blesses-girl-in-wheelchair/ NEW YORK (CBSNewYork) — A 12-year-old girl who has been confined to a wheelchair since being diagnosed with Lyme disease said meeting Pope Francis as he arrived in New York Thursday was “the most precious moment of my life.”