A huge number of parents are finding it hard to find doctors who “believe” in or even know anything about PANS/PANDAS.

We are all reporting the same list of very specific symptoms! If all our reports of these symptoms are being dismissed by our doctors, there is no register of how widespread this condition has become. 

This is a missed opportunity for the medical field to gather data for further research into whatever this condition is.

This petition was set up in the hope that by presenting our individual reports as a group, the sheer number of us struggling with this will promote an initiative towards further research into PANS/PANDAS.

In the meantime, maybe we can just raise awareness regarding this disorder and prevent another child from suffering the effects of a misdiagnosis. 

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If you are signing this petition as a parent, please provide information to the following 5 points so that we can collect basic data to forward to the NIMH. Thank you.

 

City / Country:

 

Age of child when sudden onset of symptoms began:

 

Symptoms: (please delete as applicable)
OCD
Hallucinations
Verbal tics
Motor tics
Frequent urination
Bed wetting
Hyperactivity
Mood swings
Severe separation anxiety
Sleep disturbance
Anorexia
Regression in writing skills
Teeth discolouring/decay
Suicidal behaviour
Mental confusion

 

Others: (please list other symptoms)

 

Child tested positive for:

 

Strep A
Lyme disease
Gut related issues (gluten/diary intolerance, food allergies)

 

Others: (please list other conditions your child has suffered from which you feel may be related to an autoimmune response)

 

Please list treatments (including alternative) and positive/negative outcomes.