Sandra Gompf, MDPlant City, FL, Vereinigte Staaten
Sep 13, 2016
163 more signatures to 5,000—We need your help! CSTE voted on adding "amoebic meningoencephalitis" to the National Notifiable Diseases Surveillance System—several states didn't feel it merited the addition (!!), but others were highly supportive. CSTE needs to *know* this matters to you. PAM may be rare, but our young, healthy, active loved ones—and those who will die next year and after—are much rarer and impossible to replace. We also have proof that awareness and education MATTERS: Sebastian Deleon survived with minimal brain damage—his healthcare professionals had attended last year's Amoeba Summit, sponsored by Jordan Smelski Foundation for Amoeba Awareness, and they credit that invaluable experience with giving them the tools to make the diagnosis. Moreover, the tireless activism of the Kyle Lewis Foundation for Amoeba Awareness, Swim Above Water, and all of our parents' foundations prompted CDC to make miltefosine available, and now, available through Profunda, Inc, to every hospital that requests it. Climate change is breaking records each year. PAM is now a low risk throughout the U.S. as far north as Oklahoma, Minnesota, NY, MD, not just Southern tier states. PAM is not going away. It kills young healthy active people almost exclusively, unpredictably, with incredible speed—and it's 100% preventable. And now it's *treatable* with increased awareness of health professionals and the public. Supported by the American Association of Public Health Physicians, the American Medical Association passed a formal resolution *this year* supporting physician education on PAM diagnosis and management. Doctors know this matters. You know this matters. Help us show CSTE it matters before they vote again next summer. Thanks for all your support!
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