Petition updateCDC, CSTE: Add Amoebic Meningoencephalitis to the National Notifiable Disease Surveillance System List!4th U.S. Survivor of PAM (3rd in the last few years!) on Livestream!
Sandra Gompf, MDPlant City, FL, United States
13 Sept 2016
Sebastian Deleon, 16, survived PAM just a few weeks ago with minimal neurologic damage due to immediate recognition by an astute doctor and laboratory technician, prompt access to miltefosine, and highly intensive medical care at Florida Hospital for Children. This incredible success was made possible by months of tireless activism by Amoeba Awareness foundations, phone conferences with CDC epidemiologists, and excellent professional education presented at the first Amoeba Summit in 2015, sponsored by Jordan Smelski Foundation for Amoeba Awareness. Sebastian livestreamed with his mom to Amoeba Summit 2016 for an interview with Dr. Humberto Liriano, his doctor at FL Hospital. Sebastian is starting school next week. Next week! Those of us who've survived the death of a child due to PAM know exactly how extraordinary and wonderful that really is. Still pinching ourselves! Good luck & study hard, Sebastian! <3
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