The ALS Association will be conducting a survey ANY DAY NOW to gather information from the ALS community. The results will be shared with us and will also be utilized to prioritize future actions and advocacy efforts by their organization. It will be sent out via email to everyone who is registered for the ALS Insight newsletter. It’s imperative each of us provides our individual input to paint an accurate picture of what our needs are as well as the areas needing improvement. Here’s where to go to register for the ALS Insight newsletter: http://www.alsa.org/als-care/resources/als-insight/ The following is an excerpt from a previous email I received from Barbara Newhouse, President & CEO of the ALS Association, which details their commitment: “In addition, in June, we will be sending a survey to everyone subscribed to our ALS Insights newsletter, which is sent to approximately 10,000 ALS patients and caregivers, so we can gather additional feedback about the current issues they face. This feedback will be critical to helping us develop future goals to advance our mission. We will share the results of this survey with the ALS community.” As a result of our efforts, we’ve made some great inroads in improving our quality of care. We must remain on this path together until every need of our community has been voiced, listened to and acted upon. This survey gives each of us that voice... Love and appreciate all of you…