The latest:

It took me a bit to process things, before sharing an update on here. You truly can't understand this life, with a special needs child, unless you live it. This was the result of that. You can study special education and have an understanding of the field, but we're the professionals on our child. Same way doctors are medical professionals, but still ask, "mom, is this her baseline?" Because nobody knows her like we do. 

To have been so wildly misunderstood, and have our parenting called into question without reason, is unlike anything I've ever experienced. I've always been known as the squeaky wheel, fierce advocate for my kids, in tune with every need of theirs, on top of things. This school year is no exception, I've operated the same way. The teacher has seen it,.. been bombarded by emails just to make sure they have the resources for her and her needs, I've asked for and had meetings before, with school, educational advocate, therapists, etc, to get us all on the same page, they've seen her spaces in the house I've made for her like her sensory room. I know, being a fierce advocate, some people appreciate it, and some people are put off by it. My point is, I make sure my kids have what they need and then some. I feel silly having to even say that, but here we are. Those that know us, know better. That's also the issue. We've never officially met the team that works with her (the paraprofessionals). We've seen them. They come get her at drop off and bring her to us at pickup, then walk away.  Being me, I asked for a meeting with everyone, for this. I wanted the school team that made the report, and I asked some from our medical and therapy teams to attend, as well, to basically give their testimonials. They know us well. We all got on, everyone that came to support us, spoke. The social worker from one of her specialty clinics asked why we were even in this spot, because nobody from our team has ever been concerned, and she asked what the report was exactly, in the first place, since what we were told in the beginning, wasn't what they thought. We were told diaper rash, they thought dried poop in diaper, and nobody was sure. Even at the school. Everyone had a different understanding. It was a mess. One of the principals ended up calling the caseworker to ask. I guess, as she did interviews in the beginning, everyone said something a bit different. One said poopy diaper, one said diaper rash, one said accident (urine down the leg). This was when, even the principal, was surprised. This was the special education team, calling CPS, for things that happen with diapered children. She is their only diapered student, yes,..but if you work with this group of kids, you should be aware this is possible. It is not a CPS call. It's a phone call to us, if you're concerned. She also had a tough time with her flush/clean out, so of course, if we change her at 7 something in the morning, then take her in, and they don't change her until 10am, it can also cause these things. How is that on us?

The case was unfounded and closed out. One of the principals even apologized for their team there, and said they're now going to speak with the team, to make sure they understand the mess this misunderstanding just put everyone in, and explain to them they were sorely mistaken, and there's nothing to worry about. This principal also was concerned the team reacts this way so quickly, to things that are not uncommon. They are the ones that deserve to be looked into, honestly. They've messed up her care there at school, and gone against doc orders, multiple times, which they've never liked being called out for. They said it was an attack when I called out their errors. So, I know they aren't fans of ours. This principal heard we were leaning towards a school change, but has asked us to wait a few weeks, and wants to try to get their perception to change, and work efforts where they need to be. If not, they'll assist us in finding the best school for her. 

Thank you all for your support. Please continue to share this. 🙏