Why the Epilepsy Disability Certification Process Needs to Change.

Changes in current Guidelines, assessment and evaluation process. For people with Epilepsy. Fill up the missing gaps in the latest RPWD ACT/Rights for person with disability and latest GR/Government Resolution.

वर्तमान दिशा-निर्देशों, मूल्यांकन और मूल्यांकन प्रक्रिया में परिवर्तन। मिर्गी/अपस्मार/एपिलेप्सी से पीड़ित लोगों के लिए। नवीनतम RPWD ACT/विकलांग व्यक्तियों के अधिकार अधिनियम, 2016 और नवीनतम (GR) जीआर सरकार का संकल्प में छूटे हुए अंतराल को भरें।

t's About getting Equal rights, equal opportunity, no discrimination, to get what we deserve and it's our right to get it.

1. What are the changes needed?
People with epilepsy in India should have equal opportunities and rights in education, employment, healthcare, and social inclusion. Discriminatory policies, outdated laws, and societal stigma must be reformed to ensure equal treatment.

2. What is the current process?
Currently, epilepsy is often seen as a disability under certain laws, but there is no clear protection against discrimination in jobs, education, or insurance. Many institutions and employers reject individuals with epilepsy due to misconceptions.

3. Why do people face difficulty because of it?
Lack of awareness leads to social stigma, job rejections, exclusion from certain professions, and difficulty in accessing insurance. Many people hide their condition due to fear of discrimination, impacting their quality of life and mental well-being.

4. How will these changes help?
Clear legal protections and awareness campaigns will create a more inclusive society. Ensuring equal rights in employment, education, and insurance will allow people with epilepsy to lead independent and dignified lives. Raising awareness will also help reduce stigma and misinformation.

This issue is not just about me; it is about every person with epilepsy who deserves a fair evaluation and recognition of how their condition affects their life. Many people like me are denied access to crucial benefits and support because the system does not fully acknowledge the reality of living with epilepsy.

I am advocating for a revision of the disability certification process to ensure that it is more inclusive, comprehensive, and aligned with the lived experiences of people with epilepsy. I need your support to make this change happen.

By signing this petition, you’re standing with all those who live with epilepsy and advocating for a system that truly supports and understands our challenges.

Let’s come together and make a real difference!

My story as a person with Epilepsy:

I am Rahul Karandikar, and I’ve been living with epilepsy for over a decade. Along with the physical and mental challenges that come with epilepsy, I’ve also faced significant obstacles when trying to obtain a disability certificate that accurately reflects the full impact of my condition.

The current disability certification process for epilepsy does not consider the complexities of living with this condition. It focuses primarily on the frequency of seizures, overlooking the cognitive, emotional, and psychological effects that people with epilepsy experience daily. These challenges are often the unseen and unrecognized parts of epilepsy, but they are just as debilitating.

As someone who has lived with epilepsy for years, I know firsthand the difficulties of dealing with the stigma and misconceptions about the condition. Even though I have been under treatment and have faced a range of symptoms—ranging from seizures to memory issues, anxiety, and depression—my struggles often go unnoticed by the current certification system.

I believe it is critical to update the guidelines for the epilepsy disability certification process. It should not just consider the frequency of seizures, but also the long-term effects epilepsy can have on an individual's quality of life. Cognitive challenges, side effects of medications, emotional toll, and the social stigma attached to epilepsy need to be factored into the certification process