ANOTHER LONG AWAITED UPDATE (FURTHER DISAPPOINTMENT)

It's hard to describe the constant dichotomy of being simultaneously shocked and yet immune to suprise, by the marked negligence in policies and provisions for autistic children. 

As the mother of a bright, kind and fiercely resilient autistic 6 year old, the constant stream of "no" in response to anything that can offer our family egality, it is really harrowing. 

This long awaited response has created a false impression that careful considerations and decision vetting have been at play, but no true and fair result of this investigation could result in no policy change.

The image here is my response, to waiting for months on end to be offered a poxy £250 (for how the policy change was handled). I was blamed for the NHS not updating Apollo's address despite multiple recorded phone calls of me confirming the address. They have enlisted the head of dental care (????) to look at this case so at least we know they're consulting the experts.

They have maintained that stroller use is restrictive and a malaptive way of controlling behaviour such as elopment, this highlights a terrifying level of ignorance and lacking of education or experience. 

I want to be transparent and say Apollo has made fantastic strides in his independence around mobility since I opened this complaint, although we still require the stroller for absolute safeguarding. This fight is now almost entirely for the children who attend school with Apollo and continue to NEED this service. It's for their parents who can't splash out on a new specialist paediatric chair when they're told far too late this service is being withheld. 

PLEASE continue to sign, share and spread the word about this because I haven't even started.

Thanks,

Tethys