"Reform the PIP Assessment Process to Reflect Invisible Disabilities and Trauma"


"Reform the PIP Assessment Process to Reflect Invisible Disabilities and Trauma"
The Issue
I’m Kerri, also known as K-Bear. I’m a care-experienced, neurodivergent woman living with ADHD, Autism, PTSD, fibromyalgia, and the long-term effects of trauma. I’ve overcome a lot in life — domestic abuse, abandonment, and years of trying to navigate a system that often doesn’t understand people like me.
Recently, I was denied PIP because I was seen as “coping.” But what they saw on paper was a snapshot — not the full story. Because I can sometimes cook a meal, sometimes take public transport, or sometimes create content on social media as a way to calm my suicidal thoughts, I was told I scored zero.
What they didn’t see:
That I’m often masking just to survive, then collapsing into burnout behind closed doors.
That my dog, who they scrutinised, is essential for regulating both myself and my neurodivergent children — not a luxury.
That creating content isn’t a sign of ease — it’s a lifeline that helps me stay grounded and fight intrusive thoughts.
That when I called to request a mandatory reconsideration while emotionally dysregulated, no safeguarding was offered. No reasonable adjustments were made.
We need urgent change.
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🧩 What I’m calling for:
1. A full reform of the PIP assessment process, including how invisible disabilities, neurodivergence, and trauma are recognised
2. Mandatory trauma-informed and neurodivergent-aware training for all assessors and call handlers
3. Clear safeguarding protocols for vulnerable claimants in distress — especially during reconsideration calls
4. Payments to continue during the Mandatory Reconsideration process, so people are not left destitute and in despair
5. Reasonable adjustments throughout the process — including communication support and follow-up in writing
6. Lived experience advisory panels to shape long-overdue reform.
Without these changes, we will see a stark increase in deaths by suicide.
We are already in a mental health crisis. This system is harming the very people it’s supposed to protect.
If you believe we all deserve to be seen, heard, and supported — especially in our hardest moments — please sign this petition.
Let’s make this system one that recognises the unseen.
Much love, K-Bear hugs 💜💚🧡🤗🐻
79
The Issue
I’m Kerri, also known as K-Bear. I’m a care-experienced, neurodivergent woman living with ADHD, Autism, PTSD, fibromyalgia, and the long-term effects of trauma. I’ve overcome a lot in life — domestic abuse, abandonment, and years of trying to navigate a system that often doesn’t understand people like me.
Recently, I was denied PIP because I was seen as “coping.” But what they saw on paper was a snapshot — not the full story. Because I can sometimes cook a meal, sometimes take public transport, or sometimes create content on social media as a way to calm my suicidal thoughts, I was told I scored zero.
What they didn’t see:
That I’m often masking just to survive, then collapsing into burnout behind closed doors.
That my dog, who they scrutinised, is essential for regulating both myself and my neurodivergent children — not a luxury.
That creating content isn’t a sign of ease — it’s a lifeline that helps me stay grounded and fight intrusive thoughts.
That when I called to request a mandatory reconsideration while emotionally dysregulated, no safeguarding was offered. No reasonable adjustments were made.
We need urgent change.
---
🧩 What I’m calling for:
1. A full reform of the PIP assessment process, including how invisible disabilities, neurodivergence, and trauma are recognised
2. Mandatory trauma-informed and neurodivergent-aware training for all assessors and call handlers
3. Clear safeguarding protocols for vulnerable claimants in distress — especially during reconsideration calls
4. Payments to continue during the Mandatory Reconsideration process, so people are not left destitute and in despair
5. Reasonable adjustments throughout the process — including communication support and follow-up in writing
6. Lived experience advisory panels to shape long-overdue reform.
Without these changes, we will see a stark increase in deaths by suicide.
We are already in a mental health crisis. This system is harming the very people it’s supposed to protect.
If you believe we all deserve to be seen, heard, and supported — especially in our hardest moments — please sign this petition.
Let’s make this system one that recognises the unseen.
Much love, K-Bear hugs 💜💚🧡🤗🐻
79
Supporter Voices
Petition created on 23 July 2025