My 16-year-old son is one of the many children affected by SWAN, Syndrome Without A Name. Despite his struggles, he has not received any assistance from our school system, local authorities, or the NHS. He has no ECHP plan and no GCSEs, leaving him with limited options for work or further education. For the third time now, he's been placed on a two-year waiting list with CAMHS - all because there is no help without a diagnosis.

SWAN refers to children who are undiagnosed but have developmental delays and other challenges. According to SWAN UK (Syndromes Without A Name), an initiative by Genetic Alliance UK, approximately 6,000 children are born in the UK each year with a syndrome without a name [Source: Genetic Alliance UK]. These children face significant barriers in accessing support services due to lack of recognition of their condition as a disability.

We urge our government and health institutions to recognise SWAN as an official disability category. This recognition will ensure that these children receive appropriate support from educational institutions and healthcare providers alike.

We cannot let more young lives be put on hold due to bureaucratic red tape. Our children deserve better than this - they deserve recognition and support for their unique challenges.

Please sign this petition today to demand that SWAN be recognised as an official disability category so that my son and thousands like him can get the help they desperately need.