My mam suffers from narcolepsy and cataplexy, and I am heartbroken to learn that the Irish government has decided to stop funding her old medications. Even more distressing is their refusal to provide funding for the new narcolepsy medication, Xywav, claiming it's too expensive. How can anyone put a price on life-saving medications that are essential for daily functioning? This decision will impact everyone in Ireland who suffers from narcolepsy and cataplexy.

Narcolepsy is a serious neurological disorder that affects sleep-wake cycles, causing excessive daytime sleepiness and sudden loss of muscle control (cataplexy). It's not just about being tired—it's about the inability to function normally in daily life. Imagine being unable to work, drive, or even enjoy simple activities because your body can betray you at any moment. Medication is not a luxury for those with narcolepsy; it is a necessity.

The new medication, Xywav, is a breakthrough treatment that can significantly improve the quality of life for those affected by these conditions. It offers a safer and more effective solution with less sodium than previous treatments, reducing the risk of associated health issues. However, the high cost is a barrier for many, and governmental support is crucial to make this a viable option for Irish citizens.

Statistics indicate that around 3 million people worldwide suffer from narcolepsy, and though rare, its impact is profound for those affected. In Ireland, many families are grappling with the daily struggles that this disorder brings. The financial burden of accessing essential medications without government assistance exacerbates the mental and emotional stress on both patients and their loved ones.

It's time for the Irish government to rethink its priorities and commit to supporting the health and well-being of its citizens. If other countries can subsidize such vital medications, why can't we? Let's urge them to allocate adequate funding for narcolepsy treatments, ensuring everyone can access the medications necessary for a normal and productive life.

By signing this petition, we can collectively raise our voices and demand action. Let's ensure that those who suffer from narcolepsy and cataplexy receive the support they deserve. Please sign and share this petition to make a difference.