Stop Denying Patients Access to Medical Cannabis on the NHS

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On 19th June 2018, the hard battle was won to get my son Alfie Dingley, who suffers from refractory epilepsy, access to full extract medical cannabis on prescription on the NHS.

Alfie’s doctors received the first permanent schedule one medical cannabis license which enabled them to prescribe the medicine Alfie had received in Holland under prescription. He then went onto receive the first NHS prescription when the law changed in November 2018. I (Hannah Deacon, his mother) also brought in THC based medicine legally into the UK for the first time in July 2018.

This fight not only helped my son, it played a big part in getting the law changed to allow access to medical cannabis under prescription in the UK.  

This change came into effect on 1st November 2018. With it the hopes of thousands of patients were raised. 

Over the last two years since the law changed only three prescriptions have been issued, two for children in Northern Ireland and one for Alfie.

We have seen hugely restrictive guidance from the BPNA and NICE and many excuses as to why medical cannabis can’t be available on the NHS such as, lack of research, too expensive, not available to prescribe etc. None of this is patient centred and what’s best for many of these children who have refractory epilepsy and do not have time to wait for research.

Many parents have now spent nearly two years funding private prescriptions to keep their children well and safe and vitally out of hospital. We know that legally Matt Hancock can fund these prescriptions until a clear access route for these families and their very vulnerable children is found.

Please support the End Our Pain families and sign this petition, which asks Matt Hancock to fund these families private prescriptions today to enable these families to try to enjoy the time with their children and to help find a clear path to access on the NHS. 

Please support Indie-Rose (pictured) who is hugely benefiting from taking medical cannabis and the many patients who are suffering by signing this petition.