
Hi. Two weeks ago Taylor Swift donated $100,000 to try to help a 2-year-old girl, Lilah, survive a rare brain cancer, ATRT. Lilah's mother had posted a video of Lilah watching one of Taylor's music videos and saying, "That's my friend." When Taylor made the donation, she wrote, "Sending the biggest hug to my friend Lilah!"
But Lilah's being treated with the same aggressive chemo I mention in a new article aimed at spreading a #VolleyingChallenge on my main cancer petition (www.change.org/cancerfree) to soccer. It's been taken by 20 tennis and squash greats. I write:
"On Christmas Eve, 2020, CNN reporter Andrew Kaczynski and his wife Rachel Ensign, a reporter at the Wall Street Journal, lost their 9-month-old daughter Francesca to a fungal infection due to chemo having weakened her immune system. An immunotherapy had already been used to target Francesca’s rare type of brain cancer, atypical teratoid rhabdoid tumour (ATRT), including studying the safest method of administering it. It was found to be extremely effective and eliminated all tumors. A children’s hospital in Sydney has partnered with a California-based foundation co-funding that research."
I've tweeted the article to Taylor: "@taylorswift13 I read about your very generous donation to help 2-year-old Lilah survive her rare brain cancer, ATRT. The petition this challenge is for has been signed by 35 stars, legends & professors. I write that an immunotherapy has now worked in ATRT." - https://x.com/heuristicist/status/1981386421316595925.
If a child is under 3 when diagnosed with ATRT, the survival rate is less than 15%. If you have an account on X, could you repost that tweet to Taylor to help it trend? Swifties are often quick to bring this kind of thing to her publicist's attention. Taylor reposting it would sway Lilah's parents to look into that immunotherapy, and potentially save her life.
You'd also help raise awareness of advanced breast cancer in women under 40 having risen for 20 years, directly affecting WTA pros and women's soccer teams among others. In 2018 researchers at the U.S. National Cancer Institute used immunotherapy to save a 49-year-old woman with terminal breast cancer but it's had one small trial since. At that rate it won't be available for another 20 years. I write about it in the article.
All best,
Paul