Opposing MEGA

3K supporters

Petition update

Parliamentary Questions asked by MP Kelvin Hopkins

Opposing MEGA
London, ENG, United Kingdom

Nov 26, 2016 — Kelvin Hopkins, Member of Parliament for Luton North, has asked some written parliamentary questions about ME/CFS research and treatment recommendations. He asked if the Secretary of State for Business, Energy and Industrial Strategy will request that the Medical Research Council conducts an inquiry into the management of the PACE trial to ascertain whether any fraudulent activity has occurred; and if he will prevent the PACE trial researchers from being given further public research funding until an inquiry into possible fraudulent activity into the PACE trial has been conducted. The Department for Business, Energy and Industrial Strategy indicated on 25th November that it will not be possible to answer these questions within the usual time period and that answers are being prepared and will be provided as soon as they are available.

Two further questions by Kelvin Hopkins, which are currently awaiting answers, ask the Secretary of State for Business, Energy and Industrial Strategy, if he will take steps to identify those responsible for the Medical Research Council's policies towards ME research over the last decade; and if he will seek those people's removal from positions of influence over future of ME research; and if he will review the policy of the Medical Research Council (MRC) in so far as it relates to addressing the dissatisfaction of ME patients with MRC's approach in this area.

You can find the parliamentary questions and answers here -
You can also read his questions and the answers in full in this post by UK charity Invest in ME Research -http://www.facebook.com/groups/5804522506/permalink/10154153112497507/

Though not directly connected (we have not been in contact with Kelvin Hopkins) these parliamentary questions are relevant to our petition, as MEGA is a project of the CFS/ME Research Collaborative (CMRC) which followed from the last CFS/ME 'Expert Group' of the Medical Research Council. The MRC co-funded the PACE trial (designed to provide evidence that psycho-behavioural and graded exercise therapies are effective and cost effective treatment for ME/CFS) along with the Department for Work and Pensions and other co-funders.

It's refreshing to read that Kelvin Hopkins has asked such pertinent parliamentary questions, as the answers that various people are receiving in writing from the CMRC Board about MEGA sound as though they are coming from politicians rather than scientists or medical doctors and only serve to make us ever more certain that we are right to have no confidence in MEGA.

You can cast your vote against giving more millions of pounds of 'mainstream funds' to anyone connected to highly suspect research activities by signing our petition Opposing MEGA - https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs

(Slightly longer piece now on website -

Added - noted in the comments on this update - here is Kelvin Hopkins' email contact if you would like to thank him - he may not be able to reply unless you live in his constituency - kelvin.hopkins.mp@parliament.uk

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