
Opposing MEGALondon, ENG, Reino Unido

22 nov 2016
David Tuller, PhD, is academic coordinator of the concurrent masters degree program in public health and journalism at the University of California, Berkeley. He has kindly hyperlinked to our Opposing MEGA petition in his latest article about ME/CFS research - Trial by Error, Continued: The New FITNET Trial for Kids. Dr. Tuller is renowned for his outstanding in-depth analysis of the PACE trial, posted in full on Professor Vincent Racaniello's Virology Blog. He wrote -
"Dr. Crawley is a professor of child health at the University of Bristol. She is also currently recruiting for the MAGENTA study of graded exercise therapy for children with the illness. She is a lead player in the U.K. CFS/ME Research Collaborative, an umbrella organization that is sponsoring an ambitious Big Data effort called MEGA, now in the planning stages. While patients and advocates are desperate for the kind of top-notch biomedical and genetic research being proposed, many oppose MEGA precisely because of the involvement of Dr. Crawley and Peter White, the lead PACE investigator. (Dr. White is reportedly no longer involved in MEGA; Dr. Crawley still definitely is.)" Read the full article here - http://www.virology.ws/2016/11/21/trial-by-error-continued-the-new-fitnet-trial-for-kids/
A commenter on the article wrote,
"You may be interested to this blogpost, David. https://opposingmega.wordpress.com/2016/11/19/dr-keith-geraghty-comments-on-opposing-mega/
It ties in nicely to what you are saying. Same group of people involved."
The blogpost referred to contains a shocking account of how one junior researcher joining the UK CFS/ME Research Collaborative (CMRC) has been treated by the CMRC.
By late afternoon 23rd November, our Opposing MEGA counter-petition will have been open for the same number of days as the MEGA petition (which closed on the evening of 2nd November).
MEGA has 2543 signatures (less than when it closed as it is possible to unsign a petition after closing). Opposing MEGA has already exceeded that, and will remain open to sign, but it would be good to reach 3,000 by the end of the day on 23rd November - https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
We very much appreciate everyone taking the time and trouble to look into the very serious issues raised by the opposition to MEGA and will endeavour to keep our website updated with developments -
https://opposingmega.wordpress.com
Thanks to all supporting in whatever way.
p.s. An excellent article on ME/CFS by David Tuller was published last month, 'Worse Than the Disease' - http://undark.org/article/chronic-fatigue-graded-exercise-pace
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