We have wonderful news!!
After a year-long struggle to get Eva access to a life-saving drug, Zolgensma, Eva is eventually receiving the treatment. The access to the treatment that halts the effects of Spinal Muscular Atrophy became possible through a global Managed Access Program (MAP) offered by the drug manufacturer. This drug gives Eva hope for a much better future!
While Eva is one of “lucky winners”, we are aware that there is still so much more to do. There are many more babies affected by SMA that urgently need access to this treatment. Therefore, please continue sharing this petition on social media so that more people can become aware of Spinal Muscular Atrophy and the issue around the limited access to the treatment.
Here is a link to share:
Let’s continue standing up for this change!
Thank you,
Ewelina