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Another important aspect that adds to the story is that "the early development of Zolgensma was financed by the National Institutes of Health, which funded more than $450 million in grants citing “spinal muscular atrophy,” and also by a plethora of charities such as Sophia’s Cure, Cure SMA, Getty Owl Foundation, Fighting SMA, Jadon’s Hope Foundation, the Gwendolyn Strong Foundation, and Miracle for Madison — and those are just the ones in the U.S. — that are devoted to finding treatments for SMA. These charities called upon patient families and friends to subsidize the early research and clinical trials."
Thank you for standing up for this change!
-Ewelina