Thank you for your support!! We crossed over 3,000 supporters on our petition to reduce the price of the most expensive drug ($2.1 million) that treats Spinal Muscular Atrophy (SMA). Can you share this petition on social media (Facebook, Instagram, Twitter, etc.) to continue raising awareness about this rare gene disease and the issue around it? Let's continue standing up for affordable access to a lifesaving drug.
Here is a link to it:
Zolgensma, a single-dose gene therapy, that treats Spinal Muscular Atrophy (SMA), "was cause for hope for the hundreds of patients suffering from it, along with their families and physicians — until its manufacturer, Novartis, announced the treatment’s price tag: about $2.1 million per patient. That’s believed to be more than any one medication has ever cost. Pharmaceutical companies like Novartis receive a number of government incentives to develop treatments for rare and neglected diseases such as spinal muscular atrophy, including speedier drug approvals, generous tax breaks and extended patent protections."