Thank you so much for signing our petition to reduce the price of the most expensive drug Zolgensma that treats Spinal Muscular Atrophy (SMA). We passed over 2,600 signatures but the SMA Community still needs your support. Will you help me to get more support by sharing this petition on social media? Here is a link to this campaign:
Often affected parents go through a desperate race to collect over $2.1 million for their babies' treatment (Zolgensma) using crowdfunding organizations. This is true in the US and in other countries including Canada if affected families don't use an insurance to cover the expensive cost of this drug.
In fact, in 2020 Spinal Muscular Atrophy and Zolgensma were the top three fundraiser campaigns in Canada according to GoFundMe.
But that should not be the case where parents desperately try to raise money for such an expensive treatment while at the same time their babies await to receive this drug. Zolgensma doesn't reverse any damages already done to the babies with SMA.