Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW.

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NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until October 2020.  Meanwhile it has left the current guidelines in place, despite the recommendations for treatments that are known to be harmful.

Stop harming patients.  Take CBT/GET out of ME/CFS guidelines now!  Continuing to recommend GET in the face of evidence of harm amounts to MEDICAL ABUSE and VIOLATION OF HUMAN RIGHTS.

On the 24th January 2019, a motion was passed in the British Parliament which calls for (among other things) Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) to be suspended as treatments for ME.  

 

See the GET and CBT that is currently used as treatment for ME/CFS here:

https://me-pedia.org/images/8/89/PACE-get-therapist-manual.pdf

http://me-pedia.org/images/b/b4/PACE-cbt-therapist-manual.pdf

 

See the evidence for harm here:

http://journals.sagepub.com/eprint/hWSxVIBTzDtqisvafkhE/full

http://bit.ly/MEAssSurvey2015

https://emerge.org.au/diagnosis/managing-symptoms-daily-basis/exercise-mecfs/#.WrttC4jwaUk

http://bit.ly/EmergeAusPEMandGET

http://www.workwellfoundation.org/wp-content/uploads/2018/05/MECFS-GET-Letter-to-Health-Care-Providers-v4-30-2.pdf

http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx

http://bit.ly/ChldnWmecfsVidMay2018

 

See the Parliamentary debate in February 2018 on the PACE trial and the harms of GET here:

http://bit.ly/2oi5b1t

See the further Parliamentary debate in June 2018 on Treatment and Research for ME here:   

https://www.parliamentlive.tv/Event/Index/3d63c39d-18f3-4cd7-8509-c91785dced98

https://hansard.parliament.uk/Commons/2018-06-21/debates/A49A6117-B23B-4E35-A83B-49FEF0D6074F/METreatmentAndResearch

 

Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) must stop now.  Enough ME/CFS patients worldwide have been harmed by these treatments.