Hello everyone!
We have a golden opportunity to get it right at NICE, but we all need to act. Their new ME/CFS guideline consultation is drawing to a close soon. Myself and others have been working tirelessly to compile a comprehensive response that covers everything from diagnosis to accessible community based care, medical education, the role of infection, managing orthostatic intolerance, research and more.
Now we need to make NICE listen. Everyone should to do this, whatever country you live in.
- Download the submission we have prepared here.
- Enter your details at the top.
- Email the form to NICE before 22nd Dec 2020 at cfs@nice.org.uk.
Then relax and have a lovely Christmas! Give yourself a pat on the back for doing what you can to improve care for ME/CFS patients worldwide. :)
Of course, this is YOUR submission. Only send it to NICE if you agree with the content, and you can make any changes you wish before submitting. Some people have expressed concern about our proposals for service reconfiguration. Please note these proposals do not stand alone, they are accompanied by proposals for medical education, to ensure that ME/CFS patients get the service we deserve. If you have any doubts, do check out my explanation in the last update, here.
Let's show NICE we ALL want this, and make ourselves heard!
Yours truly,
Robin more about Robin
sign petition here