Hello again!

There's only a few days to go before the end of the NICE consultation period on their draft new ME/CFS guideline.  We have a golden opportunity to get it right.  ALL are welcome!  PLEASE ACT NOW, whatever country you live in.

Myself and others have been working tirelessly to compile a comprehensive response.  We cover everything from diagnosis to accessible community based care, medical education, the role of infection, managing orthostatic intolerance, research and more.  Now we need to make NICE listen, and we need your help.  

If you agree with our proposals,

 1.  Download the submission we have prepared here.
 2.  Enter your details at the top.
 3.  Email the form to NICE before 22nd Dec 2020 at cfs@nice.org.uk.

Then relax and have a lovely Christmas!  Give yourself a pat on the back for doing what you can to improve care for ME/CFS patients worldwide.  :) 

Of course, this is YOUR submission.  Only send it to NICE if you agree with the content, and you can make any changes you wish before submitting.  Some people have expressed concern about our proposals for service reconfiguration.  Please note these proposals do not stand alone, they are accompanied by proposals for medical education, to ensure that ME/CFS patients get the service we all deserve.  If you have any doubt, do check out my explanation in the last update, here.  

Let's show NICE we ALL want this, and make ourselves heard!

Yours truly,

Robin  more about Robin

sign petition here