Petition updateBring my son Stephen home & care for him in our community #bringstephenhomeStephen at new hospital

Stephen S A MLondon, ENG, United Kingdom
Mar 14, 2015
Hi all just popping by to ask you all to keep supporting my son Stephen. Stephen moved to Oake tree manor, from that hell hole that St Andrews hospital was.
Now Ste is at his new hospital, it's in clacton colchester essex, as it goes the hospital is not so bad, although two months on I am yet to meet the medical and management team, the staff however are great caring kind knowladged autism friendly. They i see care very much about their jobs, and the patients, I see STE gets on really well with the staff. They seam to realy care about my son, STE is clean, they the carers always asking me about what Ste likes or dislikes ie food wise, they worried about him not eating, he has lost a lot of weight, in the last 3 months Ste went from trouser size 30 to 27 he is so skinny he is very pale ylellow and very week. As it always is with p,aces like this there's always hiccups. I book a visit one week in advance only to get there in the last 3 weeks and I am not booked to see my son, even though I phone in mid week to make sure I am booked in, so they dint have a visiting room available we are put in an office, Ste gets very distressed because he was not prepared for our visit, and 30 minutes on visit is cut short, and this is after I waited 25 minutes in the cold outside waiting for someone to come collect me to go in, whilst stes lunch gone coold. And yes you got it those bloody 5 Antipcychotic drugs haven't been taken off. I am at the end of my tether.
It breaks my heart as he more and more is unhappy asking me to come home with mummy. He says mummy Ste want home.
To be honest so do I , I want him to come home, I can't bear it, see two months on Ste has no care plan. His long time care plan has not been been talked about, no voice from any one.
A few weeks ago A wonderful key worker whom Ste gets along really well, she went and found activities for Ste to do, but it costs money. So I asked two things of stes social worker in islington , can this activities be put in stes care plan? He said no social services won't pay it, as its NHS England who are responsible for his care, and his care package only include medical and personal care, now how the bloody hell do they expect my son to get better if he is to be left there in bloody 4 walls and do nothing but get bored? And only to get behavioral ? The other thing I asked was for Ste to be tested for irlen glasses, the response was Dr Strouden islington psychiatric consultant , by the way I may mispel his name, but that is by the by, if he the Dr could recommend the oak tree manor to send Ste to do this test its on the NHS by the way, irlen glasses, are tested for colour, Ste suffers a lot of sensory issues one of those is brightness, when to bright he may end up having a serious meltdown. So what this glasses do is help stop the brightness issues. They can be blue green red orange, it's nothing to do with sun glasses it's just sensory , also it has nothing to do with vision. They were initially done in early 2000 for people with dyslexia. And it's been proven to help autistic people, but social worker as wonderful and caring as gphe is he can't just say lets do it, he needs to go above, and went to Dr straudon , and the answer was no, but we can test Stephen for eye glasses eye test that Ste does not need at all. He has been tested every two eyes and he is fine no problems.
Two weeks ago I met Mr Norman Lamb what a sweet kind caring and amazingly he know about irlen glasses, we were in a meeting at Whitehall and on the table there was a few people, they did not know about the irlen glasses he did, before I explained what they were he told everyone and he himself admitted they help, so he asked me why has Ste not been tested, I said what I was told above, he then asked Hasel Watson nhs who is a lovely lady who was present at the meeting I did not know she was going to be there,lovely surprise,he asked her to make sure it's done that Ste gets the irlen glasses test, he also asked her to make sure Stephen gets the care plan and his activities all provided for, as I saud to Mr Lamb I don't see sir the logic of spending £4,500 a week and thousands on Antipcychotic drugs that does not help Stephen, so where is the logistics of that ? They won't pay to get my son out of the building no education, yet they, Are happy to keep paying a hospital to keep my beautiful so. All drugged up and catatonic.
I said to him I want my son and all the sons around the country to be with their families to have a life a comunity and and their basic human right ,a decent norman as possible life.
They don't need drugs. They need love and care. They are human beings they are not criminals. They don't need to be Locked up like they are mentally ill. So I still stand by that I want my son home.
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