VITAMIN D Deficiency Doctors to recognise how debillitating It can be


VITAMIN D Deficiency Doctors to recognise how debillitating It can be
The Issue
Vitamin D Deficiency or Rickets in Children is NOT a thing of the past. After having a Flu jab in October 2016 I woke in the night as Stiff as a board unable to move screaming the place down in agony. All my joints, arms, legs, wrists, ankles, knees, shoulders,head, neck, were in the most tremendous pain and chronic stiffness. (I had a waddling gate my bones clicked, felt soft and I screamed the house down at 4am every morning for two years, I had chronic tiredness I couldn't lift anything, or walk far or get out of a chair or in and out the bath!!) I eventually managed to move, every part of my body was agony. I also had full blown flu. I carried on for a couple of weeks even going to work in a shop which wasn't easy, using my trolley to help me walk, using my stool to help me kneel or stand cutting open packets so I could take one thing out at a time, collapsing when I got home sleeping as I couldn't keep awake, couldn't eat, no appetite, I could only stomach bland food such as porridge or potato when I did manage to eat, but couldn't go on any longer. I made an appointment, all the Doctor said was come back in three weeks. I wasn't given any pain killers or examined or sent for a blood test. I managed another couple of weeks I thought I had a reaction to the flu jab. I saw my own Doctor who gave me some pain killers that didn't work. Just before Christmas 2016 I called the Doctor I said I felt like I was dying. He agreed I should do a blood test. January 2017 I was told my Vitamin D was borderline at 24.5 nmol I was anaemic and had a high inflamation I was given 400iu Vit D, iron tablets and told to take paracetmol for the inflamation. Nothing changed I was sent to a specialist as it was thought I had Fibro Myalgia. The specialist said you have Vitamin D Deficiency, CFS, Anaemia and a high Inflamation He wrote to the Doctor, I was told to take 800iu. Nothing changed apart from getting Pneumonia at the beginging of May. I could only get an appointment with the Nurses at my Practice. Thank goodness I did they got me Antibiotics (which the first Doctor could of given me at the start those Nurses were great) and told me to stay in bed for at least a week or I would have to go to Hospital. They also said my inflamation was 135. A week later when I went back my inflamation was 14, it took my pains down a notch. My Doctor retired. The new one tested my Vit D it was now 24nmol. She gave me a liquid loading dose. By the end of August my level was 95nmol I felt brilliant. I was told to go back to over the counter tablets even though they hadn't worked. By October I was going downhill and in pain. My level was 60nmol all the pain returning. The Doctor said "l think you've got Fibro Myagia l'll give you meds for that." "I said no as the specialist had said it was Vit D and the loading dose had made such an improvement." The Doctor tried to make out all the pain was in my head. I had to find liquid Vit D online. Which I did on Amazon and it was Vegan and Vegetarian Society approved. Now in 2019 I can walk, go to the gym, work easier, lift, better. Pain is much reduced. It was also not mentioned about the co-factors you need to take with the Vitamin D if you take high levels of Vitamin D, Doctors do not enlighten you on this subject. I feel strongly that it was the liquid Vitamin D that made the diffrence for me.
Its not as simple as get out in the sun, your body can be resistant. During my own research I discovered that 25-55 nmol used to be considered normal unfortunately some Doctors still go by this it is now shown to be 55-75nmol. BUT theres also recent evidence to show between 120 and 200nmol is the level to aim for with taking co factors if you suffer from an auto-immune disease.Doctors wont even monitor you or Cant, they dont want toxicity to occur but will NOT monitor your condition!
A lot of illnesses are conected to Vit D Deficiency inluding Osteoporosis, Osteomalacia, Fibro Myalgia, Psoriosis, Rhumatoid Arthritis, Diabetes 1&2, Athsma, CFS/ME, Lupus,Heart Problems, Heart Palpitations, Obesity, Anorexia, Stroke, Dementia, Cancer, MS, Vertigo, IBS, Thyroid Conditions, TB, Pneumonia, Depression, Tinitus, Vertigo, Eyesight Conditions and Tooth Decay and Bleeding Gums. Vitamin B12 deficiency seems to often run along side Vitamin D deficiency, along with folate and ferritin. All of which need much more help.
If this condition goes un-noticed it can be LIFE Threatening especially to young Children and some HAVE TRAGICALLY DIED. Vitamin D is your life Balance along with other Vitamins we should be taught about this in school via Science and cookery along with nutrician classes.
My Son is a Type1 Diabetic, is this because I have been deficient during my pregnancy with him? More research needs to be done in this area. My Daughter has Vertigo and CFS. I have CFS, Athsma,Vertigo,Eczema, Tinitus, and I'm Partially Sighted. I paid for a test for my Daughter It was then sent to Birmingham Hospital she is 25nmol and said deficient on her results, but was told by a Doctor at our practise she wasn't deficient, and to just take 800iu, without even a loading dose!!. The problem is this is only enough to keep your teeth in your mouth. This condition can be Hereditory but this is dismissed. My Father and his Brother were put into care in 1930 when they were little because they had Rickets and Rheumatism. My Sister had bandy legs and I have knock knees, curvature of the spine, and mis-shapen ribs. During my research I found a document stating Rickets can come back as deficiency in later life. I joined a Vitamin D Deficiency group and there are many people going through the same as me. So must be many more. At times Doctors dont even follow the guidelines to give the loading dose then to give you a follow up plan. I want this changed, and there to be one plan put in place for the whole country because at the moment it is down to the Doctor who may or may not decide this is a real condition. Those of us going through it will know it IS very real, follow up blood tests every Three months untill its under control, then every six months untill your recovered. More treatment options, more research done and a monitor developed so you can test at home and keep on top of it yourself. Doctors dont want us to go to them as much, or go online, but we seem to have no choice if we want to get well! Treatment for Vitamin D Deficiency is incompetant mostly! It should be a working relationship between the Doctor and Patient to optimise health. And may even address some of the issues concerning the NHS today. Something has to be DONE. Lets sort this out together PLEASE HELP.
557
The Issue
Vitamin D Deficiency or Rickets in Children is NOT a thing of the past. After having a Flu jab in October 2016 I woke in the night as Stiff as a board unable to move screaming the place down in agony. All my joints, arms, legs, wrists, ankles, knees, shoulders,head, neck, were in the most tremendous pain and chronic stiffness. (I had a waddling gate my bones clicked, felt soft and I screamed the house down at 4am every morning for two years, I had chronic tiredness I couldn't lift anything, or walk far or get out of a chair or in and out the bath!!) I eventually managed to move, every part of my body was agony. I also had full blown flu. I carried on for a couple of weeks even going to work in a shop which wasn't easy, using my trolley to help me walk, using my stool to help me kneel or stand cutting open packets so I could take one thing out at a time, collapsing when I got home sleeping as I couldn't keep awake, couldn't eat, no appetite, I could only stomach bland food such as porridge or potato when I did manage to eat, but couldn't go on any longer. I made an appointment, all the Doctor said was come back in three weeks. I wasn't given any pain killers or examined or sent for a blood test. I managed another couple of weeks I thought I had a reaction to the flu jab. I saw my own Doctor who gave me some pain killers that didn't work. Just before Christmas 2016 I called the Doctor I said I felt like I was dying. He agreed I should do a blood test. January 2017 I was told my Vitamin D was borderline at 24.5 nmol I was anaemic and had a high inflamation I was given 400iu Vit D, iron tablets and told to take paracetmol for the inflamation. Nothing changed I was sent to a specialist as it was thought I had Fibro Myalgia. The specialist said you have Vitamin D Deficiency, CFS, Anaemia and a high Inflamation He wrote to the Doctor, I was told to take 800iu. Nothing changed apart from getting Pneumonia at the beginging of May. I could only get an appointment with the Nurses at my Practice. Thank goodness I did they got me Antibiotics (which the first Doctor could of given me at the start those Nurses were great) and told me to stay in bed for at least a week or I would have to go to Hospital. They also said my inflamation was 135. A week later when I went back my inflamation was 14, it took my pains down a notch. My Doctor retired. The new one tested my Vit D it was now 24nmol. She gave me a liquid loading dose. By the end of August my level was 95nmol I felt brilliant. I was told to go back to over the counter tablets even though they hadn't worked. By October I was going downhill and in pain. My level was 60nmol all the pain returning. The Doctor said "l think you've got Fibro Myagia l'll give you meds for that." "I said no as the specialist had said it was Vit D and the loading dose had made such an improvement." The Doctor tried to make out all the pain was in my head. I had to find liquid Vit D online. Which I did on Amazon and it was Vegan and Vegetarian Society approved. Now in 2019 I can walk, go to the gym, work easier, lift, better. Pain is much reduced. It was also not mentioned about the co-factors you need to take with the Vitamin D if you take high levels of Vitamin D, Doctors do not enlighten you on this subject. I feel strongly that it was the liquid Vitamin D that made the diffrence for me.
Its not as simple as get out in the sun, your body can be resistant. During my own research I discovered that 25-55 nmol used to be considered normal unfortunately some Doctors still go by this it is now shown to be 55-75nmol. BUT theres also recent evidence to show between 120 and 200nmol is the level to aim for with taking co factors if you suffer from an auto-immune disease.Doctors wont even monitor you or Cant, they dont want toxicity to occur but will NOT monitor your condition!
A lot of illnesses are conected to Vit D Deficiency inluding Osteoporosis, Osteomalacia, Fibro Myalgia, Psoriosis, Rhumatoid Arthritis, Diabetes 1&2, Athsma, CFS/ME, Lupus,Heart Problems, Heart Palpitations, Obesity, Anorexia, Stroke, Dementia, Cancer, MS, Vertigo, IBS, Thyroid Conditions, TB, Pneumonia, Depression, Tinitus, Vertigo, Eyesight Conditions and Tooth Decay and Bleeding Gums. Vitamin B12 deficiency seems to often run along side Vitamin D deficiency, along with folate and ferritin. All of which need much more help.
If this condition goes un-noticed it can be LIFE Threatening especially to young Children and some HAVE TRAGICALLY DIED. Vitamin D is your life Balance along with other Vitamins we should be taught about this in school via Science and cookery along with nutrician classes.
My Son is a Type1 Diabetic, is this because I have been deficient during my pregnancy with him? More research needs to be done in this area. My Daughter has Vertigo and CFS. I have CFS, Athsma,Vertigo,Eczema, Tinitus, and I'm Partially Sighted. I paid for a test for my Daughter It was then sent to Birmingham Hospital she is 25nmol and said deficient on her results, but was told by a Doctor at our practise she wasn't deficient, and to just take 800iu, without even a loading dose!!. The problem is this is only enough to keep your teeth in your mouth. This condition can be Hereditory but this is dismissed. My Father and his Brother were put into care in 1930 when they were little because they had Rickets and Rheumatism. My Sister had bandy legs and I have knock knees, curvature of the spine, and mis-shapen ribs. During my research I found a document stating Rickets can come back as deficiency in later life. I joined a Vitamin D Deficiency group and there are many people going through the same as me. So must be many more. At times Doctors dont even follow the guidelines to give the loading dose then to give you a follow up plan. I want this changed, and there to be one plan put in place for the whole country because at the moment it is down to the Doctor who may or may not decide this is a real condition. Those of us going through it will know it IS very real, follow up blood tests every Three months untill its under control, then every six months untill your recovered. More treatment options, more research done and a monitor developed so you can test at home and keep on top of it yourself. Doctors dont want us to go to them as much, or go online, but we seem to have no choice if we want to get well! Treatment for Vitamin D Deficiency is incompetant mostly! It should be a working relationship between the Doctor and Patient to optimise health. And may even address some of the issues concerning the NHS today. Something has to be DONE. Lets sort this out together PLEASE HELP.
557
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Petition created on 27 July 2019