Breaking News: Canada Acknowledges In Utero Transmission of Lyme Disease!
Oct 5, 2018 —
“What is the value of one child’s life?”
As Canadians, we soon will be coming together to celebrate a cherished national holiday: Thanksgiving. At LymeHope we are genuinely thankful for the incredible news which we will now share with you.
This news pertains to all Canadians suffering from or concerned about Lyme disease, but specifically those who are concerned about the issue of maternal-fetal (in-utero) infection, also described as transplacental transmission. Lyme disease is not only transmitted through a tick-bite, it can be passed from human-to-human, mother to child in pregnancy as reported in the scientific and medical literature.
This morning we met with senior scientists and executive officials at our Federal Public Health Agency of Canada as part of our ongoing discussions about transplacental transmission of Lyme disease. We had started these discussions over 18 months ago with the Agency anchored in a respectful, transparent and collaborative approach – doors opened, we walked through them.
We were incredibly honoured to have U.S. Dr. Charles Ray Jones, MD, the world’s foremost expert in pediatric and adolescent tick-borne diseases join in this meeting. Dr. Jones shared his experience of treating over 30,000 children, from every continent in the world and every Province of Canada, over 60 years of practicing medicine and saving lives. He talked about the hundreds of congenitally infected children he has seen, and more importantly, how he has been able to cure them of their tick-borne diseases and allow them to live healthy lives.
32 years ago, in 1988, our Public Health issued a bulletin stating that transplacental transmission of Lyme disease had been documented, and yet somehow, despite 30 years going by, the majority of Canadians and medical professionals remain unaware of this. Even worse, many experts have stated, to patients and publicly it “doesn't exist”. We have been determined to change this.
Today, our senior most officials at Public Health acknowledged that transplacental transmission of Lyme disease can occur, AND that they will be updating their website to reflect this.
As mothers with suspected congenitally infected children, tears streamed down our face and hope rose in our hearts, that this truly is the beginning of a new era in Canada, a breath of fresh air. This means mothers who are told “maternal-child transmission of Lyme disease doesn't exist” can now update their medical teams of this acknowledgement by our very government, following on the heels of the recent acknowledgement of the World Health Organization.
We must urgently come together to do our very best thinking – an all hands-on-deck approach to research this alternate mode of transmission and help children and families currently affected, many of whom reach out to us personally on a day-to-day basis.
Each of you, through your signing and sharing this Petition, sharing your stories and comments, encouraging and touching our hearts, shares in this miraculous and well-deserved news. Thank you from the bottom of our hearts.
LymeHope is already taking active steps to engage and assemble a multi-disciplinary working group of interested medical experts, scientists and meaningful patient representation. We must now come together to re-examine this critical issue and help implement the necessary steps to create a new reality in Canada, where pregnant women and their medical professionals are aware of the risks of transplacental transfer and are taking steps to ensure our future generations are protected from these devastating diseases. Dr. Jones today said he would be honoured to be a part of this initiative.
We have promised our own precious children and indeed the children of Canada that we will not stop our work until the day when they all are able to walk into a doctor’s office and receive appropriate care and treatment. We are now a step closer to our dream becoming a reality.
There is much work to be done; however, today we want to share this wonderful news with you. As we gather with our friends and family this weekend, we will be giving thanks for many things, including this first important step in changing the lives of Canadian mothers, babies and children. We wish you a wonderful thanksgiving weekend, and, as always, thank you for your continued engagement and support as change happens.
In closing, just as the two-hour meeting came to a close, Dr. Jones shared the last word. He asked, “what is the value of one child’s life?” Without hesitation he answered with these words. “It’s Priceless.” We all agreed and so, we step forward with renewed hope.
We are a grass roots organization, mostly funded out of our own pockets, and we would gratefully appreciate any donation you can afford to help us continue our work. We cannot yet give charitable receipts, although our CRA charitable status application is in progress. Donations can be made through our website: https://www.lymehope.ca/contact-page.html
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If you haven’t already, please continue to sign, comment and share this petition.
Warmly & With Hope,
Sue Faber, Jennifer Kravis, Tamara House
This Picture: Left to Right - Steven Sternthal (Director General for Zoonosis Division), Dr. Howard Njoo (Deputy Chief Public Health Officer), Tamara House (Vice-President of Families and Children, LymeHope), Kim Elmslie (Vice-President Infectious Diseases Prevention and Control), Dr. Siddika Mithani (President, Public Health Agency of Canada), Jennifer Kravis (Co-Founder, LymeHope), Dr. Nick Ogden (Senior Research Scientist, Zoonosis Division PHAC), Jane Bailey (Lyme Advocate), Dr. Robbin Lindsay (Research Scientist PHAC, National Microbiology Laboratory) and Sue Faber (RN, Co-Founder of LymeHope). We were also joined via teleconference with Dr. Charles Ray Jones, (Pediatric Lyme Specialist, New Haven Connecticut), Dr. Ralph Hawkins (Internal Medicine Physician), Dr. Lisa Waddell (Epidemiologist with the National Microbiology Laboratory, PHAC) and Dr. Matthew Gilmour (Scientific Director General of National Microbiology Laboratory, PHAC).
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