https://www.gofundme.com/jacksmission?utm_source=internal&utm_medium=email&utm_content=CTA_view_campaign&utm_campaign=donation_receiptv5

https://www.facebook.com/Jacks-Mission-to-cure-Duchenne-Muscular-Dystrophy-DMD-921045201316114/?notif_t=page_name_change

This is a tough read, but we need help to try and save the life of our son Jack.

I’ve wrote out a number of these over the past month and deleted each one but now I feel it’s the time to share to raise some much needed awareness. A couple of weeks before Christmas we took our beautiful blue eyed boy to the doctors as we were concerned about his quads as it took him a little while longer than others to get up from the floor. A vitamin deficiency we thought maybe? It turned out after his blood test that our 100% normal healthy handsome boy Jack had a high level of CK in his bloodstream meaning muscle wastage and he’s since been diagnosed with Duchenne Muscular Dystrophy (DMD). 6 weeks ago we had never even heard of this so for those of you that are the same, DMD is a cruel disease that has no cure. Every single muscle in my best mate’s little body is wasting away daily. On current stats Jack may need walking aids in 12 months then need a wheelchair around 8-12 years old until his last muscle (the heart) fails around his 18th Birthday. It’s 100% fatal.

Obviously our lives have been devastated beyond belief and we thank both family and friends for the support we have already received – we really are blessed to have you all around. So why post now? Our tears run by the minute and yes were angry of course we are angry but we are not wondering why us, we are wondering “Why should this happen to any boy?” We would certainly not wish this on anyone! Why have we not heard about this cruel disease that only affects boys? We will have to come to terms with this but we will never accept it. We are not going to watch our boy suffer and die and not do anything about it. Now’s the time to fight! We need each and every one of you to share this post please to raise awareness.

We need to raise as much awareness as possible which in turn will hopefully help in raising a lot of money to go straight to research to try and find a cure. There are some fantastic parents out there whose boys also have this cruel disease that are raising millions to try and save our boys but the clock is ticking. We need local, national and international reporters. We need influential people to help spread the word! Events organisers Bankers, Lottery winners, Bloggers, Volunteers, anyone that can help us. We will be massively appreciative and forever in your debt. I would like to see more help and funding from the government as currently it’s parents raising the money for clinical trails and research? I’ve been to 3 war zones for my country so now I would love my country to help me to help save my boy and all the other boys who have this cruel condition.

Finally please do not treat us and especially Jack any different. We know it’s awkward but we do not want sympathy. Our paths have changed and our hopes and aspirations for Jack have changed beyond belief but that does not mean that he won’t have a fantastic life! I truly believe in my heart that we are going to help to cure this but for that we need funding and lots of help from lots of people.

Thanks for taking the time to read this love from Marc and Anna x