Speaking of Christmas Cheer and the new year...of the recent years we and our vulnerable have endured...Where is the goodwill of mankind toward those in disabilities? Where is the good will of the Australian government toward those who struggle to raise their disability children and put their adult children in care fearing what will happen to them?
somehow the vulnerable or missed out or overlooked as if they are not part of humanity....news for you - those with disabilities are human beings with rich beautiful lives that need care and no they are not perfect but neither is any other human being on this earth...all of us have defects and imperfections as one worker said to me your son has his own mind - yes he does have a mind - that's right and a heart and soul and spirit - they want someone easy to look after a pet maybe someone compliant like a robot no workers should treat any humans like that...even teachers do not like children that do not do everything they say perfectly and teachers pick on them bully them at times abuse occurs rampantly special needs schools even this should not be. The vulnerable and non verbal in disabilities are part of humanity and should be treated with respect and love just as all should and their parents who suffer so much in trying to do the right thing for them.
Below are the recent comments from a mother, written to me on my last post regarding parents fighting for their children’s rights - this mother is suffering….for her son we all do for our children we get exhausted from caring and from fighting for them we must support one another with love and care too… she feels guilty why should she when she is trying so hard? – we can only humanly do so much – we need support all parents of those with special needs kids do…we must not turn our backs on each other… Times are hard for us all…
I am so sick of self righteous parents condemning other parents for needing time out for a break for needing a place to put their children for a few hours a day to respite or a program, just to be able to do things in their house or rest….These self righteous parents who obviously delight in thinking their child is so perfect and quiet they never need a break from them or have a lot of family support and yet have no understanding or compassion toward other parents who are suffering and are breaking down at times from all the demands because they love their child they keep going. Yet the stress can be unbearable and many live on the edge of the abyss like this mother crying out for help and in despair over her child – don’t look down on her don’t condemn her she needs a break maybe no one is helping her we parents need to step up and stop being selfish and judgemental to each other we all need a hand we all need people to help us in our lives… lets step up for each other as that could be any of us in need at different times lets hold out our hand to each other… or none of us will make it through the night…all the best Anndrea x
"Christmas day Australia , 2021.
My special son.
I'm missing you behind words.
* * * * * * * *
If being a caring mum is a crime
- I'm guilty.
If fighting for your rights is a crime
- I'm guilt.
If trying to be your voice is a crime
-I'm guilty.
If suffering with you when you suffered is a crime
- I'm guilty.
If trying to teach others about your special needs is a crime
- I'm guilty.
If loving you unconditionally is a crime
-I'm guilty
If putting you first is a crime
-I'm guilty
- If feelings exhausted is a crime-
I'm guilty.
If admitting that I need help is crime
-I'm guilty.
If being compassionate is a crime
-I'm guilty.
If never giving up on you is a crime
-I'm guilty.
Now that you are away.
For no fault of your own
Scared, confuse and lonely.
I know that you need me even more then ever.
To hold your hand
To love and reassure you
To be your rock
To protect you.
-I feel so helpless and guilty
You fight and fight and fight for your kid’s basic human rights and then one day your child is taken away from you.
They have the power to destroy life. What hope do we have in a world that allows those in position of power to harm our voiceless kids?"
Christmas talks of a time of good will to mankind (and women) (Luke) God’s good will toward those who would do the right thing he gives them peace – why can’t we show good will to each other then? WE need more of this good will, more compassion, more wanting the best for others, wanting them to be ok, wanting to help them it is the opposite of selfish.
The government of Australia needs to show more goodwill instead of money hungry greediness it permeates through to the take of funds away from those in need especially those with disabilities have high needs that need high support than average humans…the governments needs to rise to this instead of taking off the needy and giving to the rich. Our children are treated as commodities for the providers to make their money from the desperate need of parents and children needing social interaction and support. Often instead of getting care the vulnerable and non verbal in disabilities get abuse and neglect by the providers and incidents of harm which the providers cover up so they can keep getting more NDIS funds. Keep operating their business.
Simply getting rid of providers as some parents suggest is simplistic, and is no answer there needs to be better providers, better workers. Even one on one workers I now get for my son after he was assaulted at a day program, can hurt your children. We need cameras for accountability, and WE need better workers, trained, educated, and compassionate. Instead of what we have at present - they are slave labour that resents working with our children and have no patience or understanding of disabilities at all. Even one on one workers need proper training and educating, a higher standard of worker.
I sent my Christmas greetings to the provider where my son came home from with deep bruises on his arm. I said nah I wont be coming back because look at these bruises and your CEO suspended him. How despicably you have treated my son I will never forget what you did ever. I hope they enjoyed the emails, all the execs who probably never knew anything about it. Well its time they did.
If bad will is shown by the disability providers to our children…they must be made to account for their treatment and neglect of our dear ones. Those who turn their backs on a brother in need will one day find themselves in need. In fact today with the pandemic causing great need and discrimination and division between the people of our land the vaccinated pitted against the unvaccinated a ploy by the government I believe to have further control of people here. Those who have disability children have faced discrimination against their children all their lives only now are those ‘normal’ families experiencing some kind of hardship and what it is like to be excluded. We need to help each other because many hard times have hit and will keep coming. Its not over it may never be. we need to stand together and to help those who are suffering trying to look after their special needs child. They should not ever be made to feel they are bad for doing their best for their child they are already struggling enough and feel guilty enough for not being able to meet all the needs of their disability child – no one can on their own.
All the best
Anndrea x
Sign my petition so that parents can have peace of mind when their children are in any kind of care and make providers accountable for how they treat our vulnerable ones  - Change.org/disabilitycameras

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