dear life am I doing this right? Can you see me tonight can you help me dear life?
And I know that I cant understand what you hold in your hand for me dear life...
Im a survivor ....a survivor  (Delta Goodrem 2016 Sony Records)
Thinking about my mother at this time she is no longer here and has been gone two years, and I miss her so much. I wish she was here to help me. It was her birthday on 23rd August and it is that date now as I started to write this and
the worse thing is that James was injured at the respite house on my mothers birthday last year -I knew she would have been so angry to hear he had been hurt, I would have called her and now I cant.
It burned me so much the injustice of a son who cannot talk being hurt by those who knew they could get away with it...mum would have been so mad and so upset.
I heard Delta Goodrem's song recently and she sings dear life
I felt like I have been saying it to my mother...
Dear Mum
am I doing it right? can you see me tonight? Can you help me dear life?
Dear mum I am trying my best and I will keep fighting for what's right you cared about James and you dont want him hurt again by people who pretend to look after him and then dont...
I will continue to fight to protect innocent ones like James who cannot speak up or help themselves or stand up to bullies such as carers that have hurt them and others that try to get away with it secretly...
I will not let them get away with it not on my watch
We must stand and not let providers do wrong anymore...
The law needs to change and the NDIS commission must be made accountable for its failings before things start happening to our children
It is just like in aged care where organizations intimidated and ignored complaints of the adult children of the old people who have been mistreated or neglected,
and then families could not even fight for their vulnerable aged parents' rights in the pandemic because of the threats of the organization against them - Intimidation by the aged care homes who are the same ones who initially took all the money saying they would care for these aged parents! Go figure...
the adult children were too scared to stand up to the aged care home in the pandemic as the manager threatened at Newmarch house threatened them with fines of $11,000 if they took their parents out of there! They were not allowed to protect their aged parents from the virus how is that even possible? Intimidated by the organization that says it is caring for their aged parents... for shame that is so wrong. Adult children now traumatized by what was done or not done for their parents in the covirt crisis. Human rights abused badly and now they are fighting with a class action. Many have lost their parents.
We must not stay paralysed with fear when wrong is done. Or despair will overwhelm us all. WE need to fight and stand up before it is too late. Organizations must not be allowed to get away with abusive or neglectful treatment of those they are meant to care for and we must stand up to the bullies those organizations have become including the NDIS. How dare they intimidate those who are vulnerable.
My mother's birthday was the same day my son was injured last year in a respite house...so it has been 12 months, at that time the wall of silence by the respite house management and higher and the police was so real and so much to fight and I thought "youre breaking me" with the lies and narratives... However they have not and will not and I will fight.
When my mother was dying of cancer in New Zealand, and I went over to be with her, she was being looked after by 'friends' not an old people's home, yet I had to fight with them as I wanted to call a doctor to check her...the family friend who was an executor for my mother's will,as I also was, said you dont need to call a doctor we are doing everything she needs , yes I said I do, you said she had a bad night,I want her checked... I asked for the number, the husband started getting angry and said go on then...his wife said please dont call the doctor..it appeared as if they were worried about my mother being forced to die in a hospital, but now I realized they wanted to look good and also to cover up their exploitation of her money...they had an agenda for themselves...
people who are dying have rights too I said to my own friends, and then I realized my mother's rights were being walked over...I was too stressed and alone to fight them but later I did fight when I got back on my feet. How dare they do that to my mother who was dying and to me when distressed they saw they could get me while I was down. I will never be the same or allow people to bully me with intimidation again. You have to stand up when people do wrong against those you love, they have no right but you must stand up for your rights.
The recent article by Amy Schultz about James in Crikey.com caused the NDIS to call me this week. Why are you calling now I said? you closed this case a year ago after doing nothing to punish the organization. The ndis commission lady said its been in the media...our team was in charge and I would like to do a review. We put in protocols to ensure it will not happen again. But it still is happening I said, your protocols are not working you do not punish the provider organization or the workers when they do wrong and there is no deterrent...you need to tell Stuart Robert to put cameras in respite houses so we can have evidence when our children are harmed...
you dont even penalize the organization in any way, and you should...
We have powers said the lady to ban or suspend organizations but there are processes...you should have done something I said even if I cannot prove that worker hurt my son you should have punished the provider for failure to report at the least, lying by the worker and covering up what happened, and failed duty of care... because you dont punish them there is no deterrent and they will keep doing harm to our children, and there are 10,000 incidents a month coming to the ndis commmission. She asked if she could review James's incident. Sure I said.
...noted in Amy Schultz's article the workers of the Ndis commission are told to favor the providers and not the disability person when there is a complaint!
and the provider organizations think they win because of all their money they rake in from exploiting those with disabilities but they must be held accountable for their treatment of vulnerable disability children and their families...
. I started my sons petition after waiting for investigations by the same organization that was covering itself which were not really investigations and the police wouldnt go past a report or even question the worker who was with my son...
sometimes I look at those lying providers and the NDIS wrong policies and the words of a song "na na na na na na -youre breaking me" comes to mind... organizations/providers buoyed by their money - paying lipservice to caring for those with disabilities and then the NDIS favours the providers when there is a disabilities complaint and not the vulnerable person who has been mistreated. How corrupt is that? The NDIS commission should be ashamed of itself. Instead it pours out more money into the exploitive providers.
No wonder parents are in despair and heart ache over their disability children young or old, life is hard enough.
WE need stronger laws and the cameras to defend our vulnerable from such corruption and dismissiveness of our children's treatment by providers. It is a must.
all the best
Anndrea x
https://www.change.org/p/the-federal-government-new-protection-laws-needed-for-vulnerable-persons-with-disabilities-over-18-years-old/psf/share