Bring Life-Saving Spinal Muscular Atrophy Treatment Trials To Malaysia

The issue

Spinal muscular atrophy (SMA) is the most common genetic cause of infant death and is the second most common inherited disorder, after cystic fibrosis. SMA causes progressive muscle wasting and weakness due to loss of motor neurons in the spinal cord. Patients with SMA are generally grouped into one of four types (I, II, III, IV) based on their highest level of motor function. The most common form, SMA type I, causes death by two years of age. About 1 in every 6,000 to 10,000 babies is born with SMA.

We would like to ask for your support in pushing for the invitation, by the Malaysian Ministry of Health, of the pharmaceutical companies who are spearheading treatments for Spinal Muscular Atrophy into Malaysia

Countless lives of children have been taken because of SMA, since there are treatments, let's bring it to our shores so that it can reduce the chances of it happening again.

Since Our goal is for 100,000 Signatures, we decided to have perks in conjunction with the signature milestones!

5,000 Signatures - HUGE LIVE Q&A STREAM,  we will answer all of your questions regarding SMA as best we can with our Super-Panel.

7,500 Signatures - We will be uploading our response to a (or three) challenge suggested by our supporters from the 5K Livestream.

10,000Signatures - Special Video Release on the delivery of documents and a Chat Session with a panel from the Malaysian Ministry Of Health and a huge, HUGE video from us at Spinal Muscular Atrophy Malaysia (SMAM)

avatar of the starter
Sha RoosePetition starter
This petition had 1,678 supporters

The issue

Spinal muscular atrophy (SMA) is the most common genetic cause of infant death and is the second most common inherited disorder, after cystic fibrosis. SMA causes progressive muscle wasting and weakness due to loss of motor neurons in the spinal cord. Patients with SMA are generally grouped into one of four types (I, II, III, IV) based on their highest level of motor function. The most common form, SMA type I, causes death by two years of age. About 1 in every 6,000 to 10,000 babies is born with SMA.

We would like to ask for your support in pushing for the invitation, by the Malaysian Ministry of Health, of the pharmaceutical companies who are spearheading treatments for Spinal Muscular Atrophy into Malaysia

Countless lives of children have been taken because of SMA, since there are treatments, let's bring it to our shores so that it can reduce the chances of it happening again.

Since Our goal is for 100,000 Signatures, we decided to have perks in conjunction with the signature milestones!

5,000 Signatures - HUGE LIVE Q&A STREAM,  we will answer all of your questions regarding SMA as best we can with our Super-Panel.

7,500 Signatures - We will be uploading our response to a (or three) challenge suggested by our supporters from the 5K Livestream.

10,000Signatures - Special Video Release on the delivery of documents and a Chat Session with a panel from the Malaysian Ministry Of Health and a huge, HUGE video from us at Spinal Muscular Atrophy Malaysia (SMAM)

avatar of the starter
Sha RoosePetition starter

The Decision Makers

Malaysian Ministry of Health
Malaysian Ministry of Health

Petition Updates