Petition updateFDA Accelerated Approval of Genervon's GM604 for Use In ALSContact U.S. Legislative Directors today

Nicholas GrilloSan Francisco, CA, United States
23 Feb 2015
Congratulations! Due to your incredible support we have gathered over 225,000 signatures! Thank you again but we can't rest yet. We've received some excellent suggestions such as contacting the Legislative Directors who work for our U.S. Senators on the H.E.L.P. committee. Please take a few minutes to email these people (suggested message below). With your continued support we WILL make a difference and save lives!
Thank you,
Nick Grillo, Bethany Cleveland, and Jehad Majed
Legislative Directors to H.E.L.P. Committee Senators
allison_martin@alexander.senate.gov,
tara_shaw@enzi.senate.gov,
natasha_hickman@burr.senate.gov,
jay_sulzmann@isakson.senate.gov,
john_gray@paul.senate.gov,
Elizabeth_mcdonnell@collins.senate.gov, kate_williams@murkowski.senate.gov,
jeannette_windon@kirk.senate.gov,
charles_cogar@scott.senate.gov,
jay_khosla@finance.senate.gov,
amber_kirchhoefer@roberts.senate.gov,
chris_gillott@cassidy.senate.gov,
shawn_bills@murray.senate.gov,
jean_doyle@mikulski.senate.gov,
caryn_compton@sanders.senate.gov,
derek_miller@casey.senate.gov,
jeff_lomonaco@franken.senate.gov,
brian_appel@bennet.senate.gov,
joe_gaeta@whitehouse.senate.gov,
dan_mccarthy@baldwin.senate.gov,
david_bonine@murphy.senate.gov,
jon_donenberg@warren.senate.gov
What to Say
1. Tell your personal story or simply state you support the global ALS community.
2. State you have signed a petition on Change.org urging the FDA to grant Accelerated Approval to Genervon’s GM604. Mention the number of signatures has exceeded 226,000.
3. Tell the Legislative Directors that Genervon has already met with the FDA and have asked for Accelerated Approval of this new treatment.
4. Say the entire world is waiting for the FDA decision and that we would like our U.S. Senators to contact the FDA to check-in on the process and to ensure that GM604 is being given full and fair consideration for the Accelerated Approval Program (AAP).
5. Say you would like a reply to your request.
(Should any of these people contact you saying their primary responsibility is to their constituents, please respond to them with one sentence:
"U.S. Senators on the H.E.L.P. Committee have a responsibility in this capacity to represent all American citizens.")
Please watch and share Dandy Oskey’s YouTube video:
http://youtu.be/S9ksgESwWrw
To tweet FDA: http://ctt.ec/uEdGb
To tweet Senators: http://ctt.ec/j230_
Check out our campaign website and Facebook page:
https://sites.google.com/site/aap4gm6/
https://www.facebook.com/gm604forals
As always, people can email Nick Grillo at gm6nick@gmail.com or Jehad Majed at jmajed@mac.com.
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