Petition updateApprove Genervon GM604 for all ALS patients immediately. We request that GM604 be advanced to the Accelerated Approval Program.Please contact one of these senators

Jehad MajedDearborn Heights, MI, United States
Jan 15, 2015
I've made it so easy for you to contact a U.S. Senator
Nicholas Grillo
San Francisco, CA
Jan 15, 2015 — Below, I've given you direct links to the senators email and a sample letter that can be copied and pasted if you want.
The Senate Appropriation Committee provides checks and balances for the FDA. Getting the attention of senators who sit on this committee is vital to our campaign! I've made it so easy for you. PLEASE, take time today to contact a U.S. Senator. February is coming fast and we are running out of time.
If you see your state, the link will take you to a page where you contact your senator. If you do not see your state, or if you are not a US citizen, then contact MS – Sen. Thad Cochran, who is Chairman of the Senate Committee on Appropriations.
Please note that not all states have senators who sit on this committee and there are some states with new senators who do sit on the committee but their email accounts are not set up yet (so please write to Sen. Cochran from MS).
Sample email:
FDA Conditional Approval of Genervon GM6
Dear Senator __________:
I am writing you as a (constituent/U.S. citizen/citizen of __________) who needs your help getting people with ALS a new medicine.
There is a small company (Genervon) who will be meeting with the FDA early in February about their trial drug for ALS called GM6 (a.k.a. GM604). I understand they will be asking for conditional approval of this drug with post-marketing surveillance.
As you are probably aware, ALS is a devastating neurological illness that affects people all around the world and once diagnosed, people with ALS usually have 2-5 to live as their bodies slowly become paralyzed and they suffocate from not being able to breath.
This trial drug has shown to be safe and decrease the rate of ALS progression. It’s is the best result to come of any drug trial for ALS in the past 20 years. People all around the world are gently urging the FDA to act through a sense of compassion to get this drug to people with ALS right now. They don’t have the time to wait for another drug trial. That would probably take 3 years to complete.
We have a petition going at Change.org where you can read all the comments from people who need this drug and from the general population who empathize with what they are going through.
https://www.change.org/p/food-and-drug-administration-preliminary-approval-of-genervon-gm6-for-use-in-als
Please help by encouraging the FDA to do the right thing.
Thank you,
AR – Sen. John Boozman
http://www.boozman.senate.gov/public/index.cfm/help-with-a-federal-agency
AK – Sen. Lisa Murkowski
http://www.murkowski.senate.gov/public/index.cfm/emaillisa
AL – Sen. Richard Shelby
http://www.shelby.senate.gov/public/index.cfm/emailsenatorshelby
CA – Sen. Diane Feinstein
https://www.feinstein.senate.gov/public/index.cfm/e-mail-me
CT – Sen. Chris Murphy
http://www.murphy.senate.gov/contact
HI – Sen. Brian Schatz
http://www.schatz.senate.gov/contact
IL – Sen. Dick Durbin
http://www.durbin.senate.gov/public/index.cfm/contact
IL – Sen. Mark Kirk
http://www.kirk.senate.gov/?p=federal_agency_help
KS – Sen. Jerry Moran
http://www.moran.senate.gov/public/index.cfm/e-mail-jerry
KY - Sen. Mitch McConnell
http://www.mcconnell.senate.gov/public/index.cfm?p=ContactForm
MD – Sen. Barbara Mikulski
https://www.mikulski.senate.gov/services/help/other
ME – Sen. Susan Collins
http://www.collins.senate.gov/public/index.cfm/email
MS - Sen. Thad Cochran
http://www.cochran.senate.gov/public/index.cfm/email-me
MO – Sen. Roy Blunt
http://www.blunt.senate.gov/public/index.cfm/contact-roy
MT – Sen. Jon Tester
http://www.tester.senate.gov/?p=email_senator
ND – Sen. John Hoeven
http://www.hoeven.senate.gov/public/index.cfm/email-the-senator
NH – Sen. Jeanne Shaheen
http://www.shaheen.senate.gov/contact/
NM – Sen. Tom Udall
http://www.tomudall.senate.gov/?p=contact
OR – Sen. Jeff Merkley
https://www.merkley.senate.gov/services/help/all-other-requests
RI – Sen. Jack Reed
http://www.reed.senate.gov/contact/email
SC – Sen. Lindsey Graham
http://www.lgraham.senate.gov/public/index.cfm?FuseAction=Contact.EmailSenatorGraham
TN – Sen. Lamar Alexander
http://www.alexander.senate.gov/public/index.cfm/email
VT – Sen. Patrick Leahy
https://www.leahy.senate.gov/contact/
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