What isn’t spoken about enough is this:

The body keeps score.

And when trauma-informed care is missing, systems can retraumatise instead of support.

After I gave a mainstream media interview in October 2022 about my endometriosis, my platform grew rapidly - but so did something else.

My story began to be dictated.

People engaging with my work were privately contacted and warned to “steer clear.”

I was described as reckless.

Told “no one” wanted to work with me.

This spread quickly throughout the endometriosis community.

What followed was:

• My work being boycotted
• People discouraged from attending my events
• Surveillance within my WhatsApp groups and social platforms
• A drop in engagement driven by fear-based narratives
• Escalating online abuse
• My reactions being weaponised against me
• Mistruths and rumours spreading publicly
• Accusations that I was lying about medically confirmed results
• My work replicated while I was excluded
• Being shut out of speaking opportunities
• Campaign work dismissed while others claimed credit

When I called out the bullying, it was weaponised against me.

Screenshots were shared on public platforms.

I was gaslit for speaking about what was happening to me.

When I set up crowdfunding to support my care, it too was boycotted.

Misinformation about the costs was rampant - with accusations that I was misusing funds.

After returning from Romania, I felt I could not safely share my experience - because I knew I would be gaslit and targeted again for speaking my reality.

Days after receiving my results, I gave a radio interview.

I was met with targeted online abuse accusing me of lying about those results.

All of this was happening while I was navigating a historical abuse trial - being retraumatised by experiences I had suppressed for decades.

At the same time, I was fighting for systemic change in women’s healthcare.

In July, one week after the Endometriosis Motion was rejected in the Dáil, my body reached its limit.

I travelled to Romania for treatment - but the care I received was not trauma-informed.

During an internal examination, I was retraumatised.

I knew immediately the clinic was not the right fit.

Last month, I was finally approved for the ESAIS scheme.

For the first time, I accessed trauma-informed care.

And in that space - everything my body had been holding began to surface.

This is why Cneasú exists.

Because these experiences are real.

Because survivors are being silenced.

Because trauma-informed care is not optional - it is essential.

We need:

Trauma-informed healthcare systems
Accountability within advocacy spaces
Protection for survivors who speak out
Ethical standards in community-led work
An end to the normalisation of silencing, coercion, gaslighting, and reputational harm

If you believe in change, support this petition.

And donate towards the work being done