Petition update8th Richest County in the World (IsleofMan) denies life changing Duchenne drug Translarna

It's not a done deal but we are hopeful after receiving Translarna information booklets

Clive HeskethOnchan, Isle of Man

Oct 26, 2016

It's not a done deal but we are hopeful after receiving Translarna information booklets. We have explained to Finley how Translarna should help him, and how often he needs to take it. Super happy boy to have his new medicine information books, looks like we are getting closer to access to Translarna. Thank you to everyone who has been helping.

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