Petition update8th Richest County in the World (IsleofMan) denies life changing Duchenne drug Translarna

Captain Jack Sparrow off to the Halloween disco but tomorrow is Alder Hey

Clive HeskethOnchan, Isle of Man

2 Nov 2016

Captain Jack Sparrow off to the Halloween disco but tomorrow is Alder Hey. Finley is attending Alder Hey Children's hospital in Liverpool for further baseline tests on Thursday regarding Translarna, to check his health, weight and to move a step closer to access to Translarna if all goes well.

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It's not a done deal but we are hopeful after receiving Translarna information booklets

Wow what a fight this has been but we are almost there now.