8th Richest County in the World (IsleofMan) denies life changing Duchenne drug Translarna

The Issue

My name is Finley. I am 7 years old, I live on the Isle of Man and I have Duchenne muscular dystrophy.

Duchenne muscular dystrophy means that my muscles are poorly and it can be difficult for me to get around. It means I can’t always keep up with my friends in the playground.

A medicine called Translarna could help keep my muscles stronger.

Boys like me in England, Scotland, Wales and Northern Ireland have this medicine, but the Isle of Man Government has told me I can’t.

I need the Isle of Man Government to let me have the medicine.

If I don’t get the medicine then me, my mummy, daddy and sister will have to leave the Isle of Man.

I am asking the Chief Minister of the Isle of Man to help me.

Please sign my petition and help change the Isle of Man Government’s mind.

Thank you

Finley

 

 

avatar of the starter
Clive HeskethPetition StarterI'm the father of Finley, aged 7 and I was devastated to find that the Isle of Man will not fund Translarna when England, Scotland, Wales and Northern Ireland will.
This petition had 5,412 supporters

The Issue

My name is Finley. I am 7 years old, I live on the Isle of Man and I have Duchenne muscular dystrophy.

Duchenne muscular dystrophy means that my muscles are poorly and it can be difficult for me to get around. It means I can’t always keep up with my friends in the playground.

A medicine called Translarna could help keep my muscles stronger.

Boys like me in England, Scotland, Wales and Northern Ireland have this medicine, but the Isle of Man Government has told me I can’t.

I need the Isle of Man Government to let me have the medicine.

If I don’t get the medicine then me, my mummy, daddy and sister will have to leave the Isle of Man.

I am asking the Chief Minister of the Isle of Man to help me.

Please sign my petition and help change the Isle of Man Government’s mind.

Thank you

Finley

 

 

avatar of the starter
Clive HeskethPetition StarterI'm the father of Finley, aged 7 and I was devastated to find that the Isle of Man will not fund Translarna when England, Scotland, Wales and Northern Ireland will.

The Decision Makers

Howard Quayle
Howard Quayle
Chief Minister Isle of Man
Ralph Peake
Ralph Peake
George Ralph PEAKE MHK (Douglas North)
Muscular Dystrophy UK
Muscular Dystrophy UK
Finley's Tracks
Finley's Tracks

Petition Updates