Petition update8th Richest County in the World (IsleofMan) denies life changing Duchenne drug Translarna

Muscular dystrophy treatment may be funded with your kind wishes

Clive HeskethOnchan, Isle of Man
Oct 25, 2016
We are still waiting on the decision, which is stressful and we hope your support and kind wishes get us over the line soon. Mrs Kate Beecroft MHK says that is on the condition the drug, Translarna, can be funded at the discounted price given to NHS England by the drug company. She confirmed the news in a Tynwald question for written answer from David Cretney MLC.
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